It has been a long time since I have visited this site. I wanted to write to say thank you - I found the forum a very useful source of information during my treatment. I refered to the forum for new drugs on trial and just coping with living with CML.
On the 11th Feb 2008 I had a cord blood transplant at Kings in London. Sadly Glivec and Disatinib didn't work for me - and by the end of 2007 my CML was starting to show very early signs of progression. I am now very well - I have a tiny trace of CML - less than 0.1, which is being treated with Alpha Interferon. My last PCR showed that's it is decreasing and I'm hopeful that it will go all together.
Good luck to everyone at CML Support. I wish you all the very best for the future.
Best wishes, Jo
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Cord Blood Transplant
Dear Jo,
thanks for updating here on your progress. It is great news that your transplant using cord blood as a source of donor cells has been successful and the disease is now at very low levels with ongoing reduction.
I would be fascinated to read more about your experience. I assume you had a double cord for your donor cells?
Did you have a full transplant or a reduced intensity sct?
I am so pleased to hear that all is well and I am sure IFn will eventually clear the residues of bcr/abl. Are you due to stop IFn therapy in the future when all traces of disease are gone?
I had a RIC SCT back in late 2003 with 400mg imatinib for 12 months post transplant. It took some time after that for me to respond to donor lymphocyte infusions but in mid 2006 I got the result I was waiting for and have had negative pcr's ever since.
I wish you well and a CML free future.
kind regards,
Sandy
Hi Jo
Wow you must be one of the first to be in the Kingscord scheme,great news on your progress I to would be interested to hear more.Professor Mufti and his team have come a long way in 22years since the first bone marrow transplant at kings.
best regards
Michael