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Hello everyone,

I am a new member and I just wanted to say how useful I have found this website to be since being diagnosed with CML in June. It is really helpful to be able to read all your real life stories after having read the medical websites to find out all about CML, which I had never heard of until my diagnosis.

I am 31 and had a miscarriage 11 weeks into my first pregnancy, which was obviously pretty distressing for me and my husband. Whilst in hospital I had some blood tests and a bone marrow sample and a week later gave us the news that I have CML. I am being treated at Trafford Hospital and they put me on Glivec, which seems to be working as my white count is back to normal from 110 in June. Luckily I haven't suffered any major side effects and am now back at work and carrying on as normal with monthly blood tests. I am due my fist PCR test at the end of September.

We have been advised not to get pregnant for the time being so we will have to wait and see what happens. I've been encouraged by the posts I've found on this website as I must admit that being told I have CML did knock me for six and I am not sure I have yet fully got used to the idea. Anyway, I have read about a few of you who have had babies so that makes me hopeful it can still happen for us.

My family and friends have been brilliant, rallying round and looking after us and we are now looking forward to moving house in the next few weeks. I just wanted to introduce myself and thank you all for your posts on this website because I don't think there is any substitute to hearing of real experiences when you are faced with having an illness you know nothing about!

Thanks again and hello!

Stella

Hi stella,sorry to hear about the miscarriage and of course the cml,i was 26 when i was dx and its now 6 years on,things are hard to take in at first but with time things get easier,email me anytime at kathy.prudence@homecall.co.uk
take care ,kathy

Hi Stella, My heart felt sympathy goes out to you, your husband and your family. That really is sad news.
I, and everyone else on this great site know only too well that very few words can make things seem better at this early stage.
I know you have a lot more to deal with than what I had to when I was diagnosed. However, Kathy is right when she says things do get easier. For me this was by knowing that there are other people out there who can appreciate some of what you are going through.
Kind regards

Bram

Dear Stella,
Welcome to this forum. I would also like to add that I am so sorry you had a miscarriage. I understand from personal experience how that feels.

I am sure as the months go on and as your test results confirm an optimal response to Glivec, you will be in a better position to consider, along with your doctor, the best treatment options for managing the disease both before conception and during a subsequent pregnancy.

Meanwhile, I suggest you try to attend the UK CML Patient and Carer Seminar which this year is taking place in Nottingham on November 14th. You will find details of this event and download a registration form from the links under 'Newswire' on the right side of this page.

Kind regards,

Sandy

Many thanks for those comments. I find looking at this website bucks me up when I am feeling sorry for myself! Everyone is so kind and it is a good source of info. I will think about coming to the Nottingham event and will certainly read all the info afterwards.

Thanks again,

Stella