Hi, I have not contributed to the group before although I have followed it since I was diagnosed in 2002. I went through the usual treatments of Interferon. and was then given Gleevec. After a couple of years it was decided I was not responding quickly enough and was put onto Dasatinib to which I responded well. In August this year a pleural effusion was picked up and I have now been lucky enough to be put on Tasignia which I have been on for for a week with no side effects touchwood. I attend the Hammersmith Hospital. I have recently been encouraging lots of my friends and colleagues to sign up to the No.10 petition and have just written to my MP Andrew Mackinley explaining the situation with NICE. I am having difficulty understanding a lot of the NICE findings especially as they mix pounds and dollars when they discuss costs. I hope to go to the Hammersmith meet in January. At the moment I am attending every two weeks to be monitored on the Tasignia and the lung problem. I hope to meet some of you at the Hammersmith in January.
Clive