I have posted some helpful points from Simon Phil and Andy under the newswire section.
I will update as I go on this week
Sandy
For those of you who haven't read the comments by the Royal College of Physicians, this is a very easy to read response to the model that NICE used. It highlights in clear language what some of the problems are:
http://www.nice.org.uk/nicemedia/pdf/RCPhysiciansComments.pdf
Many of these are already listed under the newswire link, but I thought some of you might want to take a look at what the experts had to say.
Bhiru
Great work by everyone in getting this matter to the attention of MPs and the press
and into the Downing Street site. Let us hope it will have the desired result.
I have not posted for a long time but read the content of the posts very frequently. All very enlightening and comforting. I am doing well after 5 years on Imatanib and my pcr readings hover around 0.002 but do understand the real anxieties of others less fortunate.
I have written to Oliver Letwin our local MP ( who I think is currently writing the Conservative election strategy) and he has responded very promptly with a copy of the letter he has written to Andy Burnham ( Health Minister).
I feel sure we have a strong argument to pursue.
Barry