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NICE ACD

It seems that NICE have released the ACD for imatinib intolerant individuals:

http://www.nice.org.uk/guidance/index.jsp?action=article&o=47297

Their current recommendation is still to not make dasatinib and nilotinib available. We have until 2nd March to respond, with their next meeting on the 9th March.

I haven't had much of a chance to go over this yet, but I will most certainly respond. It would leave the majority of imatinib intolerant patients with no alternative!!

NICE released a press statement with this:

http://www.nice.org.uk/media/AD8/84/2010012DasatinibAndNilotinibForCMLAC...

In fact, the BBC apparently did a piece this morning, based on NICE's press release and my plight. I haven't seen it, and only found out about it an hour ago - sending a response as soon as I heard. Really, though, I understand there wasn't much to the story.

Here we go again...

Hi Jed,

On behalf of CML Support Group, I am currently responding to this ACD. I also urge all of you to respond as individuals on the NICE website. ... Please see my post below for how you might argue the case for IM intolerance.

Sandy