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Managing Treatment Related Side Effects website

I've found an excellent website which covers the three main TKIs.   Apologies if you already know about it, bit it is here:

http://www.cml.org.il/action4u/uploads/pdf/sideeffectscarolynblasdel.pdf

I found this really helpful, thanks for posting!

Vickie

I, too, found this useful, but I have a question.  One of the slides said that, in addition to avoiding grapefruit, we should also avoid Seville oranges.  I wonder if anyone has been told this by their doctor.  I make marmalade from these oranges every year - does the possible harmful effect continue when the oranges are cooked?  I'm not planning to give up marmalade unless my doctor tells me to - and I'm not keen to ask her!

Hi Olivia, I think oranges and other citrus fruit are OK- Grapefruit juice has another componant that means it interacts with TKI's. I am sure you can carry on eating your lovely home made marmalade ;o)

Best wishes

Sandy

Hi Olivia

i was told to avoid grapefruit, Seville oranges (but others are ok) and pomegranate. 

My consultant was very specific about this and it was in all the trial notes too. I am on Nilotinib.

Hope that helps, i shall miss my herbal teas with Seville oranges in :(

em x