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Started Dasatinib yesterday

Hi   Started Dasatinib yesterday, 100mg once a day.   Almost no sleep last night - insommnia is it a side effect?  or was it nerves?  Also horrid headache. Plus I am so white I look as if I have been dropped into a vat of bleach.

Plus side had normal brekkie this morning - no starving time. All fingers crossed in hope this will give less side effects than Nilotinib or Gleevec. On Nilotinib had very high blood sugar, and cholesterol plus severe skin problems, to name just a few side effects.   Seems TKIs and I have a love hate relationship, I love them they hate me !!!

Pennie.

Wishing you all the best of luck and love with Dasatinib Pennie. For ME it's certainly much gentler than Glivec, less water retention, slightly less bone pain, NO cramps (yay!) but lack of sleep my worst side effect. I have spoken with other users about this and am happy to discuss in email.

It has also been more effective for me than Glivec, but after two years, still only into single figures...However, the major fall happened very rapidly, so, once again...

Loadsa luck that this drug works for you and gets you away from those nastier side effects of Nilotinib! No more fasting!

xx

Hi Pennie, hope dasatinib helps you and you settle on it ok. I started on Dasatinib Sept 2010, and yes I did notice intially my headaches, or vague ones, increased a bit. I just made sure I drunk plenty, rested and used lavender oil on my head which all seemed to help and it did pass. I have suffered from migraine in the past, I checked it was ok for me to still use the drug I took with that (migraleve) and it is, but I  haven't had to use it since! I have found skin issues to be a problem - was referred to a consultant for almost acne-like skin which I've been prescribed something for....anyway best wishes and good luck!

jo

Hi Pennie,

I started Dasatinib on thursday, i was sick last night and have woken up with a headache both mornings but the joint pain I had on Glivec has almost gone.

I'm just hoping it works for me as I was reistant to Glivec.

Good luck

Jackie