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Heartfelt thanks to Sandy and team

Not just for this wonderful website, but for this current massive effort by Sandy, the website team and all those fellow CML patients who have the scientific knowledge and knowhow when dealing with NICE. It is helpful to feel that we can do something - even if emailing everyone to sign the petition, getting offspring to post on Facebook and lobbying our MPs. It's so much better to be able to contribute to this effort rather than sitting idly by and keeping fingers crossed.

A milion thanks,

best wishes

Chrissie

Yes hear hear! to everyone who is working to get this guidance overturned - let's not give up. I  know I've posted the link and an explanation on facebook and several of my friends are now re-posting and doing the same. Will be contacting my MP in the next day or so. So yes, let's keep strong together.

best wishes

JO

I agree. Being a newbie i really don't have the medical knowledge or understanding but having someone who does fighting our corner is such a relief. As I am sure you all have been doing I have been emailing everyone i can think of, does anyone know how to find out who your MEP is? Will try my local paper next as i don't hold out much hope with my mp. Feel like i have to do something, just can't sit and wait!!

Thanks

Em x