I have just come back from my clinic appointment -still pcr negative- phew! in the battle with NICE I sometimes forget I have CML! but then remember that even transplant patients can relapse.
Took some fliers down with me to advertise the petition- which they allowed me to put on the notice board- also some of the doctors there promised to sign (lets hope they remember)
Petition is now at a very healthy 4025 and growing daily- some great heartfelt comments too.
4 leading UK Clinicians have agreed to send a letter to the editor- Telegraph- we are coordinating with the journalist on this- hopefully it will go in on Monday.
EDM has 12 signatories- still waiting for my MP (libDem) to contact me- I will book an interview with her for next week and see if that works.
Sandy
