You are here

Now in Blast phase

Hi all,
Just a progress report on me!
I was admitted to hospital Thursday as, after two weeks off dasatinib, my platelets still hadn't recovered and my white count had shot up, so they did a BMB.
This showed 40% blast cells and I was told I now have acute myeloid leukaemia.
It has moved very fast apparently and my head is still spinning from it all.
I've had 4 bags of chemo so far and not feeling too bad touch wood!
The plan is to get me to 5% blast cells or less then go for a transplant.
They are being really good to me here, am in QE, and i think i moved to this hospital just in time as my last hospitals dithering and negligence could have contibuted to this, it certianly didn't help!
Anyway, thats all from me, I might start a blog if I can figure it out!!

Jackie

Dear Jackie... I am sorry to hear this and I am amazed you had 40% blasts in your marrow without evidence in you peripheral blood- surely there must have been blasts in your blood?

- but I am glad you are at such an excellent centre as QE. You can start a diary/blog by signing up to the 'Caringbridge' site... just google it. It is free and sets it all up for you.
Let me know if you do and I will put it on the blog page.
Meanwhile, keep updating us here.
Best wishes,
Sandy

Quite a few people jump from the chronic stage straight to the blast stage( bypassing the accerated stage that would show blasts in the peripheral blood).
Jackie I Spend a couple days a week in day treatment with people in blast stage and they are doing very well.One has a 100% unrelated bone marrow transplant to look forward to, and another has a 90% unrelated match.Keep strong.
Best wishes
Michael

Hi Jackie
I'm so sorry and shocked to hear of the change in your cml - when I saw the post about your platelets dropping I meant to msg you as mine did that on dasatinib(went down to 12) and it seems quite common. You must be feeling overwhelmed with it all. I know it's easier said than done, but try and stay strong and take comfort in all the sucess stories there are. I'm probably going to be having a bmt in August, as I've got the T315i mutation, and it is a lot to get your head round I know. I know you've got young children too, like me, and maybe that will help us be stronger and fight more...take care and don't give up hope. Feel free to e-mail me if you like - diywid@supanet.com - perhaps we can be bmt 'pen-pals' :)
take care and thinking of you
Jo