5 weeks it took for my platelets and neutrophils to get up to a level a could start taking the Nilotanib again, 5 weeks of nothing! I have a bone marrow biopsy next week, just hoping i will have done well, before stopping my treatment i was really positive, now i am not so sure. Still i have to keep my spirits up, see what the results show and remember i am lucky, it could be a lot worse.
Thanks for all your support, had a wobbly few weeks but hoping to get my fighting spirit back now.
Fingers crossed, will let you know how i get on
hope everyone else is doing ok
emma x
You are here
finally back on Nilotanib!
Hi Em - just give yourself time and hopefully things will settle. It is hard, I understand - my nurse used to say I needed to be a patient patient, and some people's body's (excuse the grammer) just need more time than others. Hopefully you'll get good results soon to encourage you. Best wishes Jo :)