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Cml and Other cancer.

Hi all.
I hope you have all had a wonderful christmas.
I haven,t posted on here for a while
I was diagnosed with CML in march 2009 and have been on imatinib since may 13 th 2009
I have responded well to this and had my second 0.00 result in november 2011 hopefully this trend will continue.
However everything has,nt been a bed of roses, in november 2011 i found a lump in my testicals and subsequently had surgery onthe 22nd november, my results came back from the pathology lab confirming i now also have testicular cancer. This then led to me having a CT SCAN to stage the new cancer.
The following meeting with my oncologist took place on the 29th december where a plan of treatment was decided.
From the end of next week i am to undergo chemotherapy for a total of nine weeks going through three full cycles of treatment.
None of my oncologist are concerned about my cml or imatinib as they are extremely confident with my out come and understand fully how imatinib works and ill be continuing with it whilst undergoing the chemo..
Psychologically in myself i am content and fuly accept what is happening.
By remaining positive it is possible to improve your whole well being, this is something i discovered after my diagnosis with cml and subsequently has made me ready and capable of facing my new minor issues.
Remember no matter how bad things may seem, it is important that we remain positive and confident in ourselves our carers and our medical teams..
I hope all who use this site have a wonderful new year and hope to see you at the next CML conference.

Stuart x

Hi Stuart

Just wanted to wish you and everyone here all the best for the new year ahead.Yourself and others on this site have been a great help to me when I was first dx in Oct..

You have a great PMA , very inspiring and just what I wanted to hear - so here's to a smooth treatment over the coming weeks and keep us posted on how you're doing . Also brilliant re: CML results!.

Ditto also looking forward to meeting you all at the next conference. Take Care Jo ;) 

Hi Stuart

Sorry to hear you've joined me in combining CML and testicular cancer. Mine came the other way round -  I was diagnosed with a mixed seminoma/teratoma in 1988, and although the medics won't definitively say it, my CML (dx 2007) probably arose because of the RT I had at that time. I responded to imatinib and my PCR has been 0.00 for over two years now.

The only way they cross over for me now is that my testosterone replacement needs a regular LFT as well as the imatinib, and I had to stop both clinics doing them to save holes in my arm. I get them to read each other's notes in the file instead of blindly repeating tests.

You're absolutely right to be very positive about all of this - the chemo may be difficult at times but a positive attitude and supportive friends/family/forums will help you through I'm sure.

Best wishes to you and everyone for a healthy 2012, and here's to success in getting NICE to use an assessment model for TKIs which is appropriate and gives sensible recommendations.

Alastair

Hi Stuart

I was diagnosed with CML in December 2004. My Pcr readings have been low 0.002,0.005 etc for many years

and have been doing really well on Imatanib for a 67 year old!

However my last three readings have

shown a slight  upward trend  going from 0.002 to  0.009 in the last year. Still low and probably the envy of many.

 I have shared treatment with Dorset County Hospital and Hammersmith.

However, I have been diagnosed with prostate cancer this year and have just completed 25 days of radiotherapy

combined with hormone therapy through Poole Hospital.

I am also to have 80-100 radio active seeds implanted into my prostate on 12th January (Brachytherapy)

These seeds remain active for about a year and remain in place for the rest of my life.

Non of the various consultants and radiographers have been the slightest

bit concerned about the CML  and have reassured me throughout the treatment that my CML will not be affected.

So I approach both types of cancer with a positive outlook and hope I shall be in remission in both for many years.

Imatanib is clearly a wonderful drug and each day I thank the body of doctors and scientist who developed this drug.

I try to lead a healthy and active life.

Happy New Year to all

 Barry.

Hi Barry
I am glad you are doing well.and thank you for your words of reassurance.
The response from the oncologist really demonstrates how good imatanib is,
The fact that they are not worried about the CML whilst under going other treatments show,s the effectiveness and confidence of the professionals and the drugs they use.
I hope your health remains good and wish you well to the future
Kindest regards

Stuart