The Derbyshire Telegraph is looking to do a feature on rare diseases as a result of the Government’s consultation on a national plan for rare diseases. They are looking to feature the story of a patient or a family member and their experience of living with a rare disease.
We feel it is important to make sure rare cancers are included. We are working closely with other rare cancer groups as well as Rare Disease UK, to this end.
Please contact me at cmlsupportgroup@gmail.com if you live in Derby or the South Derbyshire area if you are willing to be interviewed this week.
Thanks,
Sandy