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polycythemia vera

Dear all,

A friend of mine has been diagnosed of Polycythemia Vera. I am looking for support groups in Europe or Spain.
Any idea?

Thanks.
Carmen

Hi Carmen,

PV is a Myelopleriferative Neoplasm (as is CML, ET and MF). I belong to the ACOR listserve for MPN. It has a knowledgeable membership who might be able to advise on a support group in Spain.

You need to apply online to join the list at www.ACOR.org - Scroll down the medical conditions to find MPN and join the listserve. 

Also I suggest that you look at 

www.mpdinfo.org
MPN-NET/MPN Education Foundation
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Best wishes,

Sandy