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Off Bostutinib back on Nilotinib

Hi.

Just come back from Hammersmith and have changed back from Bostutinib to Nilotinib because the side effects for me were worse on Bostutinb100mg than Nilotinob 600mg.

So have to wait a week before restarting.

A bit disappointing but have still got a good pcr 0.01. Im now considering Disatinib.

Hi Steven,

sorry to hear you could not tolerate bosutinib- or rather the side effects were worse. I hope all this is resolved soon for you. Just have one question- dasatinib is not approved for 2nd line (or 1st or even any line) - will you still be able to get access to it?

Nevertheless... good to see your low pcr result. 

I do hope Carol has recovered from surgery? please wish her well,

 

Hi Sandy

My consultant has said that my local PCT would have to be asked but thought that would not be a problem as they had agreed to fund my Nilotinib before it was approved.

However Im still thinking what to do but have been assured that if it did not wagree with me I could return to Nilotonib.Im on a weeks break.