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sandy craine on 10 May 2011

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Last updated: 10 May 2011

'Write To Them' - easy to use resource for contacting MP's
by sandy craine (May 10)

Contact your Councillors, MP, MEPs, MSPs, or

Northern Ireland, Welsh and London AMs for free

http://www.writetothem.com/
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Last updated: 10 May 2011
sandy craine on 9 May 2011

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Last updated: 9 May 2011

Responding directly to NICE
by sandy craine (May 9)

Responding directly to NICE

NICE as you know do not accept letters from individual members of the public, but you can visit their website and complete a commentary on the Appraisal Committee
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Last updated: 9 May 2011
sandy craine on 9 May 2011

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Last updated: 9 May 2011

A day to remember-A victory in the war against cancer
by sandy craine (May 9)

I think this is an opportune moment for reflection- given what we are now facing in the UK- I thought it might be good to take a look at the article below about Brian Druker MD who's
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Last updated: 9 May 2011
sandy craine on 1 May 2011

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Last updated: 1 May 2011

Dasatinib- posted by Lee Loughran
by sandy craine (May 1)

Dasatinib
Submitted by LeeLoughran on Sat, 30/04/2011 - 04:27.

My 7 year old son (who had ALL PH+) has been on Dasatinib since his last bone marrow transplant (two years ago). It
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Last updated: 1 May 2011
ruddoug09 on 30 April 2011

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Last updated: 30 April 2011

A charity challenge!
by ruddoug09 (Apr 30)

I was diagnosed with CML in October 2010 and since then I've decided to spend most of this year raising money for Leukaemia & Lymphoma Research (www.beatbloodcancers.org). Having
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Last updated: 30 April 2011
sandy craine on 28 April 2011

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Last updated: 28 April 2011

NICE ACD
by sandy craine (Apr 28)

On May 6th, NICE will publish their recommendation (ACD) for the MTA (multi technology appraisal) of dasatinib, nilotinib and high dose imatinib (600-800mg) for treatment of imatinib resistant CML
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Replies: 0

Last updated: 28 April 2011
sandy craine on 27 April 2011

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Last updated: 27 April 2011

ecancermedicalscience
by sandy craine (Apr 27)

http://www.ecancermedicalscience.com/

watch the following video interview with Giora Scharf on non-adherence in TKI therapy

http://www.ecancermedicalscience.com/tv/biography.asp?vid=879
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Replies: 0

Last updated: 27 April 2011
sandy craine on 27 April 2011

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Last updated: 27 April 2011

Leukemia Insights : Vol. 16, No. 1 Spring 2011 New Strategies in Chronic Myelogenous Leukemia
by sandy craine (Apr 27)

http://mdanderson.bm23.com/public/?q=preview_message&fn=Link&t=1&ssid=5862&id=kmxaqec3zqfgmwxb9rnjevyk3ni1t&id2=9s9sei2nuf2m0ftrm1t4ydtwnv49o&subscriber_id=
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Last updated: 27 April 2011
sandy craine on 15 April 2011

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Last updated: 15 April 2011

Good resource for searching the internet
by sandy craine (Apr 15)

Take a look at the following link - this is a new resource for cancer patients finding reliable sources of information on the internet. I greatly admire Andrew Schorr who is the founder of patient
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Last updated: 15 April 2011
Barbs on 7 March 2011

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Last updated: 7 March 2011

very good CML site in Canada
by Barbs (Mar 7)

http://www.CMLeukemia.com

My doctor sent me this link - hope you don't mind me passing it on,

Barbara
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Last updated: 7 March 2011
sandy craine on 3 March 2011

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Last updated: 3 March 2011

ELNetwork newsletter
by sandy craine (Mar 3)

http://www.leukemia-net.org/content/home/information_letter/info_letter/e8183/infoboxContent9232/InformationLetter_07_2011_web_final.pdf
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Last updated: 3 March 2011
sandy craine on 25 February 2011

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Last updated: 25 February 2011

ecancerTV
by sandy craine (Feb 25)

Here is a link to an interesting group interviews on ecancerTV from the 2010 ASH meeting re: CML

Sandy

http://www.ecancermedicalscience.com/tv/ash.asp?play=826&cid=0&scid=0&q=
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Replies: 0

Last updated: 25 February 2011
Ali Loram on 18 February 2011

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Last updated: 18 February 2011

TKI's & drug/food/herb interactions.
by Ali Loram (Feb 18)

I found this web site, www.nationalcmlsociety.org There is a thorough list of interactions for those of us taking TKI's including the normal ones like grapefruit but it also says no green tea
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Replies: 0

Last updated: 18 February 2011
ian hinley on 10 February 2011

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Last updated: 10 February 2011

Inhibition of autophagy: a new strategy to enhance sensitivity of chronic myeloid leukemia stem cells to tyrosine kinase inhibit
by ian hinley (Feb 10)

http://informahealthcare.com/doi/abs/10.3109/10428194.2010.546913
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Last updated: 10 February 2011
ian hinley on 4 February 2011

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Last updated: 4 February 2011

Interesting: Scientists reprogram marrow cells from patient with chronic myeloid leukemia
by ian hinley (Feb 4)

http://www.news-medical.net/news/20110204/Scientists-reprogram-marrow-cells-from-patient-with-chronic-myeloid-leukemia.aspx
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Replies: 0

Last updated: 4 February 2011
lisad123 on 1 February 2011

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Last updated: 1 February 2011

SWine Flu and CML
by lisad123 (Feb 1)

Has anyone had this? Darren was told he has Swine flu yesterday and now on taniflu. His temperture isnt coming down very quickly. He is meant to be back at hospital tomorrow but have called and
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Replies: 0

Last updated: 1 February 2011
SwanValleySue on 1 February 2011

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Last updated: 1 February 2011

e-Article (January 2011) Complex Nature of CML
by SwanValleySue (Feb 1)

CML Friends - This just published study addresses the complex nature of treating CML, and why it will become even more complex in the future.
http://www.nature.com/leu/journal/v25/n1/pdf/
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Replies: 0

Last updated: 1 February 2011
michelle on 31 January 2011

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Last updated: 31 January 2011

Is it ok to take Propolis, Manuka Honey and high dose probiotic with Glivec?
by michelle (Jan 31)

Two weeks ago I finished a long course of antibiotics (had to take the antibiotics for 3 weeks for a UTI) I have not seemed to bounce back. I now have a really sore throat and a dry cough which I
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Replies: 0

Last updated: 31 January 2011
John M on 20 January 2011

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Last updated: 20 January 2011

Unrelated BMT 29-1-09 treated for tumor 12/10, DLI 12-01-11
by John M (Jan 20)

Hoping some aspect of my experience will give re-assurance to someone here (now or later).

I was diagnosed with CML in September 2006. Although complete molecular remission was achieved, a
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Last updated: 20 January 2011
ali on 19 January 2011

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Last updated: 19 January 2011

kidney stones again!!!
by ali (Jan 19)

My husband has had his second kidney stone in 6 months (different sides though), so thats three kidney stones in two years. Has anyone else had this problem whilst on Glivec for a few years. The
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Replies: 0

Last updated: 19 January 2011