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sandy craine on 14 August 2009

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Last updated: 14 August 2009

Bcr/Abl kinase domain mutations and drug resistance. -Traffic light chart plus PDF link to full article
by sandy craine (Aug 14)

Bcr-Abl kinase domain mutations, drug resistance, and the road to a cure for chronic myeloid leukaemia

Thomas O’Hare,1,2 Christopher A. Eide,2 and Michael W. N. Deininger2 1Howard
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Replies: 0

Last updated: 14 August 2009
sandy craine on 13 August 2009

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Last updated: 13 August 2009

Sign the UICC World Cancer Declaration
by sandy craine (Aug 13)

Please add your support by signing the World Cancer Declaration today!

Aug 9 2009
The time is ripe for cancer care to become a global priority. The Max Foundation, help CML patients who do
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Replies: 0

Last updated: 13 August 2009
Steven D on 31 July 2009

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Last updated: 31 July 2009

NEWS FLASH> Annual CML Seminar on 14th November in Nottingham
by Steven D (Jul 31)

Hi

Have just herts the date for the annual seminar in Nottingahm will be the 14th November. I will update as and when I hear unless I am beaten to it by someone else. Steven D.
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Replies: 0

Last updated: 31 July 2009
sandy craine on 17 July 2009

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Replies: 0

Last updated: 17 July 2009

Cutting-edge drugs to be fast-tracked, bypassing NICE
by sandy craine (Jul 17)

Cutting-edge drugs to be fast-tracked, bypassing NICE

15 July 2009

The UK government has announced plans to allow highly innovative drugs to be made available on the NHS for a limited
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Replies: 0

Last updated: 17 July 2009
sandy craine on 10 July 2009

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Replies: 0

Last updated: 10 July 2009

Please sign the call for action against rare cancers!
by sandy craine (Jul 10)

There are a little over 230 signatures for the call to action campaign to date.
I would like to ask all members who access this site to PLEASE sign this important petition.
The CML Support Group is
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Replies: 0

Last updated: 10 July 2009
chattena on 7 July 2009

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Replies: 0

Last updated: 7 July 2009

Yorkshire Chronic Myeloid Leukaemia Support Group Success!!
by chattena (Jul 7)

A Big thank you to everybody who attended the support group held on the 6th July in Leeds. I think it generated a lot of usefull discussion.

The next meeting is proposed for September 14th 7pm
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Replies: 0

Last updated: 7 July 2009
sal on 19 June 2009

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Replies: 0

Last updated: 19 June 2009

1st PCR on Nilotinib
by sal (Jun 19)

Rob has now been on Nilotinib for 12 weeks and his Pcr is 1.8 his last PCR on Dasatinib six months ago was 0.4 however he was off treatment altogether for about four months while we waited for the
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Replies: 0

Last updated: 19 June 2009
sandy craine on 9 June 2009

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Replies: 0

Last updated: 9 June 2009

IFN-? wakes up sleeping hematopoietic stem cells -
by sandy craine (Jun 9)

Persistent CML-initiating cells, or CML stem cells, which are protected from imatinib killing by their quiescent status, are

probably responsible for the regrowth of the disease.
See under
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Replies: 0

Last updated: 9 June 2009
david barnes on 3 June 2009

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Replies: 0

Last updated: 3 June 2009

manchester/blackpool bike ride
by david barnes (Jun 3)

I am takeing part in this ride and hope to raise some money for christies hospital and just wonderd if anyone else who suffers from CML is entering
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Replies: 0

Last updated: 3 June 2009
sandy craine on 1 June 2009

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Replies: 0

Last updated: 1 June 2009

Tasigna 'users'
by sandy craine (Jun 1)

I would like to hear from UK patients who are being treated with Tasigna and who would be interested in attending a 'round table' disussion about the experience.
I believe there are up to 3 places
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Replies: 0

Last updated: 1 June 2009
sandy craine on 1 June 2009

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Replies: 0

Last updated: 1 June 2009

ASCO 2009
by sandy craine (Jun 1)

For all those who are interested I have put links to ASCO 2009 abstracts that are relevant to CML on the Seminars and Conferences page - link on main menu then click on 'other conferences'
I have
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Replies: 0

Last updated: 1 June 2009
chattena on 27 May 2009

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Replies: 0

Last updated: 27 May 2009

Yorkshire Cancer Network CML support group
by chattena (May 27)

CML support group intitial meeting is on the 6th July , Level 7 Bexley Wing St James, Leeds. 7pm until 9pm with refreshments. Dr GM Smith will be talking. For further information ring Alison Chatten
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Replies: 0

Last updated: 27 May 2009
sandy craine on 17 May 2009

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Replies: 0

Last updated: 17 May 2009

Interim analysis of the STIM trial. STopIMatinib
by sandy craine (May 17)

The following will be presented at ASCO
Sandy
Persistence of complete molecular remission in chronic myeloid leukemia after imatinib discontinuation: Interim analysis of the STIM trial.
Author(s): F
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Replies: 0

Last updated: 17 May 2009
sandy craine on 5 May 2009

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Replies: 0

Last updated: 5 May 2009

Anemia Drugs May Raise Death Risk in Cancer Patients
by sandy craine (May 5)

I would like to thank Jan Geissler of Leukaemie-online.de for forwarding this article.

I (we) think it is important to share data from studies that increasingly show that some cancer patients
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Replies: 0

Last updated: 5 May 2009
SwanValleySue on 3 May 2009

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Replies: 0

Last updated: 3 May 2009

2 x Clinical Trials (Omacetaxine) commencing in Australia 2009
by SwanValleySue (May 3)

I have copied an article that was in our Local Sunday Times Newspaper that is asking for CML people to start two clinical trials in Australia for Omacetaxine - the Australian contact and number is
Category: Uncategorised

Replies: 0

Last updated: 3 May 2009
sandy craine on 6 April 2009

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Replies: 0

Last updated: 6 April 2009

DH publishes guidance on NHS patients who wish to pay for additional private care
by sandy craine (Apr 6)

Dear All,
The Dept. of Health have published its guidance on 'top up fees'.

I have put the link under 'Newswire' for those of you who want to read the full guidance document and the background
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Replies: 0

Last updated: 6 April 2009
sandy craine on 2 April 2009

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Replies: 0

Last updated: 2 April 2009

Ros Shirran in Yours magazine
by sandy craine (Apr 2)

Just in case some of you are not aware, 'Yours' magazine has a full page feature of Ros Shirran which tells her CML story.

You can link to a PDF of the magazine under 'newsire' (right side
Category: Uncategorised

Replies: 0

Last updated: 2 April 2009
sandy craine on 31 March 2009

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Replies: 0

Last updated: 31 March 2009

RARE Cancers Forum Project: Pathways to Diagnosis
by sandy craine (Mar 31)

I am working with Andrew Wilson Webb of RCF, and other members of Cancer 52 (a coalition of rare cancer groups in UK), to help bring forward the RCF's audit on patients experiences of diagnosis (in
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Replies: 0

Last updated: 31 March 2009
SwanValleySue on 11 March 2009

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Replies: 0

Last updated: 11 March 2009

Blood Results - Clarification - Information
by SwanValleySue (Mar 11)

Hi guys
I just had my 3 month testing - PCRU continuing which is great.

At times my BCR/abl was either negative 10 or 11 against BCR of 530 000 or 250 000 and this time against 530 000 BCR the
Category: Uncategorised

Replies: 0

Last updated: 11 March 2009
skiinglaketahoe on 9 March 2009

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Replies: 0

Last updated: 9 March 2009

Bone Marrow Donation
by skiinglaketahoe (Mar 9)

Hi,
I just saw this article on the BBC web site and thought it was quite interesting.
http://news.bbc.co.uk/1/hi/health/7830969.stm
Susan

www.caringbrige.org/visit/susanleigh
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Replies: 0

Last updated: 9 March 2009