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sandy craine on 25 February 2010

Category: Uncategorised

Replies: 0

Last updated: 25 February 2010

Petition
by sandy craine (Feb 25)

Dear All,
the petition is growing and is collecting a lot of international as well as UK signatures. There are very good messages on there and lots of heartfelt support from all over the UK and the
Category: Uncategorised

Replies: 0

Last updated: 25 February 2010
sandy craine on 9 February 2010

Category: Uncategorised

Replies: 0

Last updated: 9 February 2010

Newswire for NICE ACD links
by sandy craine (Feb 9)

See Newswire for the links to NICE for comment on ACD for IM intolerance- scroll down the NICE page until you reach the Summary. This makes for easier reading.

Deadline for individual
Category: Uncategorised

Replies: 0

Last updated: 9 February 2010
Dennis on 8 January 2010

Category: Uncategorised

Replies: 0

Last updated: 8 January 2010

Jerry Mayfield and Dasatinib [Sprycel].
by Dennis (Jan 8)

Just as an aside to what's already been posted, but Jerry posted this, in essence as a reply about a patient worried about a transplant, in November last year:
--------------------------

"It
Category: Uncategorised

Replies: 0

Last updated: 8 January 2010
sandy craine on 6 January 2010

Category: Uncategorised

Replies: 0

Last updated: 6 January 2010

Petition still open
by sandy craine (Jan 6)

If you know anyone you could encourage to sign Michelle's number 10 petition then it has a few more days left to add to the 6000 plus signatures. It has done very well so far and I would like to
Category: Uncategorised

Replies: 0

Last updated: 6 January 2010
Steven D on 2 January 2010

Category: Uncategorised

Replies: 0

Last updated: 2 January 2010

Award for playing GOD
by Steven D (Jan 2)

I note that the Boss of NICE was given an award in the new years honours list.

Should somebody who sits and plays GOD be given such an award. I think not. VOTE at the next election and get rid
Category: Uncategorised

Replies: 0

Last updated: 2 January 2010
Steven D on 2 January 2010

Category: Uncategorised

Replies: 0

Last updated: 2 January 2010

Letter from Minister of State for Health Services to my MP
by Steven D (Jan 2)

From the Minister of State for Health Services to James Clappison MP
"Thank you for your letter to Andy Burnham enclosing correspondence from your constituent ……… about the availability of dasatinib
Category: Uncategorised

Replies: 0

Last updated: 2 January 2010
vickiep on 2 January 2010

Category: Uncategorised

Replies: 0

Last updated: 2 January 2010

Dasatinib efficacy
by vickiep (Jan 2)

I have Google Alerts set up on my puter and this came through this morning. It does seem to present a very powerful case in favour of early access to Dasatinib in Imatinib resistant people.
Category: Uncategorised

Replies: 0

Last updated: 2 January 2010
sue on 23 December 2009

Category: Uncategorised

Replies: 0

Last updated: 23 December 2009

Christmas Wishes
by sue (Dec 23)

Hello everone I just wanted to wish everyone a Happy Christmas and lets hope that 2010 is a good year for us all. Sue D
Category: Uncategorised

Replies: 0

Last updated: 23 December 2009
Matthew Wilson on 22 December 2009

Category: Uncategorised

Replies: 0

Last updated: 22 December 2009

NICE - letter from MP
by Matthew Wilson (Dec 22)

Hi all,
Sorry for the delay in responding.
I today received a letter from the House of Commons, from David Howarth, MP, Cambridge.
He has written to the Secretary of State for Health and also sent
Category: Uncategorised

Replies: 0

Last updated: 22 December 2009
louisealdridge on 11 December 2009

Category: Uncategorised

Replies: 0

Last updated: 11 December 2009

New entrant- Louise Aldridge
by louisealdridge (Dec 11)

Hi,I have just found this support group ,my husband Malcolm was diagnosed sept05 at the age 34,we discovered his 3 siblings were not a match for BMT and he started on Glivec which intially he
Category: Uncategorised

Replies: 0

Last updated: 11 December 2009
sandy craine on 11 December 2009

Category: Uncategorised

Replies: 0

Last updated: 11 December 2009

ASH 2009
by sandy craine (Dec 11)

Please see under newswire for my fellow advocate Jan Geissler's updates from ASH. Jan has just returned from ASH and will share his updates with us over the coming weeks. There is very good news
Category: Uncategorised

Replies: 0

Last updated: 11 December 2009
sandy craine on 18 December 2009

Category: Uncategorised

Replies: 0

Last updated: 18 December 2009

ASH 2009- overview and Best of..
by sandy craine (Dec 18)

I have uploaded the best of ASH which has been compiled by Jan Geissler. You can find his overview and summary under Newswire and also under Seminars and Conferences.
Sandy
Category: Uncategorised

Replies: 0

Last updated: 18 December 2009
kurt on 6 December 2009

Category: Uncategorised

Replies: 0

Last updated: 6 December 2009

Hyperbaric oxygen therapy
by kurt (Dec 6)

Has anyone tried this? Basically a dive decompression chamber, it apparently helps with various ailments, I was wondering if it would help my bone marrow start producing more red blood cells.
Category: Uncategorised

Replies: 0

Last updated: 6 December 2009
Steven D on 1 December 2009

Category: Uncategorised

Replies: 0

Last updated: 1 December 2009

Email sent to ITN NEWS
by Steven D (Dec 1)

Hi
I have just sent an email to ITN News with regard to a story in tonight's news talking about different survival rates of some cancer patients in some parts of the country to other parts.
I have
Category: Uncategorised

Replies: 0

Last updated: 1 December 2009
vickiep on 29 November 2009

Category: Uncategorised

Replies: 0

Last updated: 29 November 2009

Dasatinib - Insomnia
by vickiep (Nov 29)

Really struggling with this, tried a lot of different stuff and have always managed a good sleep prior to Dasatinib. Didn't start until about 8months in and it's putting my job in jeopardy...Any
Category: Uncategorised

Replies: 0

Last updated: 29 November 2009
Pennie on 28 November 2009

Category: Uncategorised

Replies: 0

Last updated: 28 November 2009

Response from Shadow Sec for Health
by Pennie (Nov 28)

I have heard back from Andrew Lansley. Shadow Sec for Health
'assure you ....entirely pursuing this with the Government at present..... will write to Sec of state to raise issue with him'
Category: Uncategorised

Replies: 0

Last updated: 28 November 2009
Bhiru on 27 November 2009

Category: Uncategorised

Replies: 0

Last updated: 27 November 2009

Needed - Patients near Manchester for a contact at Manchester Evening News re. NICE ACD
by Bhiru (Nov 27)

Bhiru's husband, Jed, here:
My cousin is a journalist. She hasn't lived in the UK for a while, but still has some contacts here. Today she mentioned that she has a friend who works for the
Category: Uncategorised

Replies: 0

Last updated: 27 November 2009
sandy craine on 24 November 2009

Category: Uncategorised

Replies: 0

Last updated: 24 November 2009

Access to nilotinib/dasatinib
by sandy craine (Nov 24)

If anyone is currently being denied access to either 2nd generation drug, please contact me

cmlsupportgroup@gmail.com
Sandy
Category: Uncategorised

Replies: 0

Last updated: 24 November 2009
sue on 20 November 2009

Category: Uncategorised

Replies: 0

Last updated: 20 November 2009

Yorkshire Cancer Network
by sue (Nov 20)

I had alot of help from Yorkshire Cancer Network when I was waiting for my PCT to approve gleevec they might be able to help regarding Dasatinib and Nilotinib,so I spoke to one of their User
Category: Uncategorised

Replies: 0

Last updated: 20 November 2009
Pesty on 18 November 2009

Category: Uncategorised

Replies: 0

Last updated: 18 November 2009

Feverfew
by Pesty (Nov 18)

Hi all
I know from previous posts that there was talk of a trial incorporating Feverfew as it was thought to possibly kill off the leukaemia stem cells.
Does anyone have any information on this?
Category: Uncategorised

Replies: 0

Last updated: 18 November 2009