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Carlo on 24 November 2006

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Replies: 0

Last updated: 24 November 2006

Lichen
by Carlo (Nov 24)

Hi everyone
I was dx CML last June and then I started to take Glivec.
Can anyone tell me advice about oral lichen planus (reticular) or oral lichenoid eruption due to imatinib or due to CML ?
Thanks
Category: Uncategorised

Replies: 0

Last updated: 24 November 2006
Apryl on 13 November 2006

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Replies: 0

Last updated: 13 November 2006

Anyone attending Hintchingbrook
by Apryl (Nov 13)

Hi all
Is there anyone out there who goes to The Woodland Centre at Hinchingbrook Hospital, Huntingdon. Jenny Dawes has asked me to post this to see if anyone would be interested in forming a local
Category: Uncategorised

Replies: 0

Last updated: 13 November 2006
peter m on 2 November 2006

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Replies: 0

Last updated: 2 November 2006

Disatinab
by peter m (Nov 2)

I was on 400mg of Glivec but this was increased last year to 600mg and even this began to be less and less effective. I am now on a trial of Disatinab and the immediate effect of this is as good
Category: Uncategorised

Replies: 0

Last updated: 2 November 2006
Elle on 1 November 2006

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Replies: 0

Last updated: 1 November 2006

I need some advice!!!!! Again....
by Elle (Nov 1)

Hi Everyone
I've not posted for a while but i have been keeping an eye on you all!!! I was dx Feb 2005 , was on Glivec 400mgs until April this year where it was increased to 600mgs. Was doing well
Category: Uncategorised

Replies: 0

Last updated: 1 November 2006
David Morton on 31 October 2006

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Replies: 0

Last updated: 31 October 2006

Off to Spain
by David Morton (Oct 31)

Hello everybody,
I haven't posted for a while. As others have already said, the seminar was very well organized and great fun. It was good to hear that Glivec getting stronger but the comment that I
Category: Uncategorised

Replies: 0

Last updated: 31 October 2006
Paul Cooke on 25 October 2006

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Replies: 0

Last updated: 25 October 2006

Cardiac Effects of Glivec
by Paul Cooke (Oct 25)

I hope that the following information will be of help:
Novartis and the FDA have notified healthcare professionals in the US about revisions to the precautions section of the prescribing information
Category: Uncategorised

Replies: 0

Last updated: 25 October 2006
sandy craine on 21 October 2006

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Replies: 0

Last updated: 21 October 2006

pcr tests explained
by sandy craine (Oct 21)

for all those that are new to this or are confused about what molecular tests mean, please click on FAQs/Glossary button above left........ then click on the box entitled PCR results explained.
Category: Uncategorised

Replies: 0

Last updated: 21 October 2006
Bee on 20 October 2006

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Replies: 0

Last updated: 20 October 2006

PCR results
by Bee (Oct 20)

Hi All
Does anybody know how long PCR results are taking from Hammersmith at the moment? It's over 6 weeks now and still no sign....D'ya think they've fallen into that Black Hole again?

Where
Category: Uncategorised

Replies: 0

Last updated: 20 October 2006
sal on 18 October 2006

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Replies: 0

Last updated: 18 October 2006

moles
by sal (Oct 18)

in the last couple of months I've noticed about 7 new moles on the skin of Robs chest/stomach. They are very dark brown almost black. Not sure how long they've been there but only noticed them
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Replies: 0

Last updated: 18 October 2006
amidouin on 18 October 2006

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Replies: 0

Last updated: 18 October 2006

PCR one year
by amidouin (Oct 18)

Hello,

I had a letter from my onc this morning,she is satisfied because my PCR one year is under 10-3 reduction.I leave very close from Paris. I sign 1 year ago for the protocol SPIRIT,
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Replies: 0

Last updated: 18 October 2006
Suzie Q on 17 October 2006

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Replies: 0

Last updated: 17 October 2006

New member
by Suzie Q (Oct 17)

Hi, I was diagnosed in jan 06 and have only just discovered this support group on line. Can someone let me know what the abbreviations stand for im assuming BMB is bone marrow biopsy? Also i've
Category: Uncategorised

Replies: 0

Last updated: 17 October 2006
CRCRuth on 17 October 2006

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Replies: 0

Last updated: 17 October 2006

snoring
by CRCRuth (Oct 17)

I was diagnosed 3/04 during a routine blood test(17 wbc), after BMB(31 wbc) and started on 400 Gleevec and have been ever since. A BMB at 1yr showed no Luekemia cells. I go for a checkup with my
Category: Uncategorised

Replies: 0

Last updated: 17 October 2006
jjhollis100 on 17 October 2006

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Replies: 0

Last updated: 17 October 2006

1st PCR Results
by jjhollis100 (Oct 17)

Hello All
It's been a couple of months since my 1st post here.... just moved to London etc.
Last week was my first visit to Hammersmith hospital, where I was seen by Prof J.Apperley who took the
Category: Uncategorised

Replies: 0

Last updated: 17 October 2006
jamesyliu2002 on 17 October 2006

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Replies: 0

Last updated: 17 October 2006

HELP…My brother seems do NOT respond to Sprycel (Dasatinib), Help..
by jamesyliu2002 (Oct 17)

My brother (47 yo) who has been diagnosed as having CML for 10 years and has been on Chemotherapy and Immune therapy since then with first lines medications including hydroxyurea, busulphan and
Category: Uncategorised

Replies: 0

Last updated: 17 October 2006
David on 14 October 2006

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Replies: 0

Last updated: 14 October 2006

New Drug
by David (Oct 14)

Doctor friends of ours from Australia have sent us a press cutting dated June 2006 from The Australian, a newspaper. It is a business news article about the share price of an Aussie drug company
Category: Uncategorised

Replies: 0

Last updated: 14 October 2006
ypoulton on 12 October 2006

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Replies: 0

Last updated: 12 October 2006

pcr results
by ypoulton (Oct 12)

Just got my latest results from HH my pcr is now at ZERO and I wanted to share this news with everyone it makes the side effects worth it for a zero result.

I enjoyed the seminar on Sat wished
Category: Uncategorised

Replies: 0

Last updated: 12 October 2006
kestrel on 12 October 2006

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Replies: 0

Last updated: 12 October 2006

Heart problems
by kestrel (Oct 12)

Hi everyone,

I first posted a few weeks ago, as I am caring for a 13 year old boy diagnosed with CML at the beginning of August. Since then we have been trying to get our heads round all the
Category: Uncategorised

Replies: 0

Last updated: 12 October 2006
sandy craine on 11 October 2006

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Replies: 0

Last updated: 11 October 2006

ENACT trials info.
by sandy craine (Oct 11)

elizabeth has managed to get the ENACT trails centre details on this page. (well done E on the technical front:o)))

just click on the box on top right of this page.

sandy
Category: Uncategorised

Replies: 0

Last updated: 11 October 2006
Elizabeth Rees on 10 October 2006

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Replies: 0

Last updated: 10 October 2006

Tasigna [A MN107] and Sprycel [BMS ..] trials in the UK
by Elizabeth Rees (Oct 10)

In response from a post under the CML Seminar string -

you do not need any sponsorship to travel to Europe as these trials are all being held in the UK.

Trials are currently for those
Category: Uncategorised

Replies: 0

Last updated: 10 October 2006
Tufty3 on 10 October 2006

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Replies: 0

Last updated: 10 October 2006

Complimentary therapies
by Tufty3 (Oct 10)

Hi everyone
I just got back from my first CML National Seminar in Manchester, where I met some great people and heard a lot about Glivec and the new drugs (nilotinib and dasatinib).
I am currently a
Category: Uncategorised

Replies: 0

Last updated: 10 October 2006