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david.pillow on 9 October 2006

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Replies: 0

Last updated: 9 October 2006

Doing very well on Glivec
by david.pillow (Oct 9)

Today I was told that after 2 years 7 months on Glivec, the Hammersmith couldn't detect my CML at all - i.e. pcr=0.000%!
Almost better than that, for the last 6 months my energy levels are back to
Category: Uncategorised

Replies: 0

Last updated: 9 October 2006
pat preston on 8 October 2006

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Replies: 0

Last updated: 8 October 2006

CML Pre Seminar and Conference, Manchester. Oct.6th 7th. Manchester
by pat preston (Oct 8)

As usual the standard was high and I am indebted to all who were involved in making this possible. There were many young newly diagnosed CMLers and I hope they gained more courage to go forward
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Replies: 0

Last updated: 8 October 2006
Coyney on 8 October 2006

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Replies: 0

Last updated: 8 October 2006

Do I/you need to have the flu jab???
by Coyney (Oct 8)

Dear all,
I'm 312 days post transplant now and just wondered if you think I'll have to have the flu jab this year or do you think it's slightly to early? My blood counts are now pretty much within
Category: Uncategorised

Replies: 0

Last updated: 8 October 2006
Vanessa Priest on 8 October 2006

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Replies: 0

Last updated: 8 October 2006

Hair Thinning
by Vanessa Priest (Oct 8)

Hello everyone

I have a question for you. My hair has been thinning now for 3 or 4 months. I want to know, how thin exactly is it likely to get? My onc tells me it won't grow back as thick
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Replies: 0

Last updated: 8 October 2006
Steven D on 5 October 2006

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Replies: 0

Last updated: 5 October 2006

2 Tickets for the Seminar
by Steven D (Oct 5)

2 tickets have just become available for the seminar this weekend. If you would like to email me I can give you more info.
It is on a first come first serve basis.
Regards
Steven Davies

steven
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Replies: 0

Last updated: 5 October 2006
chris hoyle on 4 October 2006

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Replies: 0

Last updated: 4 October 2006

transplant ....what to do ?
by chris hoyle (Oct 4)

Hi everybody,

not been on for ages but need help and advice. Was diagnosed march 2004,taking 500mg glivec n doing ok but am really strugling with chronic fatigue now.I have a match with my
Category: Uncategorised

Replies: 0

Last updated: 4 October 2006
sal on 4 October 2006

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Replies: 0

Last updated: 4 October 2006

pcr
by sal (Oct 4)

Robs 15 month pcr came back this week at 8%. His 12 month was 145.He'd been on increased dose of 600mg only about 6 weeks when the latest test was taken. Rob would've liked a bigger decrease I think
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Replies: 0

Last updated: 4 October 2006
elisar on 4 October 2006

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Replies: 0

Last updated: 4 October 2006

At Last!!
by elisar (Oct 4)

Just back from Hospital after receiving my latest bone marrow results. After 2 years and 4 months I have reached the magic number 0. I did ask what test they used and was told that it was done by
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Replies: 0

Last updated: 4 October 2006
Nancy C. on 2 October 2006

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Replies: 0

Last updated: 2 October 2006

links to patient diaries????
by Nancy C. (Oct 2)

Do you still have links to patient diaries....I can't seem to find it.
Nancy C.
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Replies: 0

Last updated: 2 October 2006
jamesyliu2002 on 30 September 2006

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Replies: 0

Last updated: 30 September 2006

Can Aanyone tell me how to order the Sprycel from Canada ?
by jamesyliu2002 (Sep 30)

Can Anyone tell me how to order the Sprycel from Canada ?
we live in US and it is too expansive for us to purchase this new hope medication for my brother. Having heard that it would be much cheaper
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Replies: 0

Last updated: 30 September 2006
Des on 30 September 2006

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Replies: 0

Last updated: 30 September 2006

eye problems
by Des (Sep 30)

A while ago I asked for advice about a squidgy lump on the white of my eye. After reading your replies I felt it may be a pterygium, as it sounded a bit similar.
The other eye has now developed a
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Replies: 0

Last updated: 30 September 2006
sandy craine on 29 September 2006

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Replies: 0

Last updated: 29 September 2006

Low White Blood Cell count - neutropenia while on Gleevec
by sandy craine (Sep 29)

this post was hidden in another string at the bottom of the page. also as it was posted by a non registered user (you need to register and get a password before you can post) it was waiting for a
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Replies: 0

Last updated: 29 September 2006
susanwilson on 28 September 2006

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Replies: 0

Last updated: 28 September 2006

Feeling really down
by susanwilson (Sep 28)

Hi, its been quite a while since I visited the Forum but today I need some help after visiting my consultant this morning for the results of my 12 month bmb and a general discussion on how my
Category: Uncategorised

Replies: 0

Last updated: 28 September 2006
angela on 27 September 2006

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Replies: 0

Last updated: 27 September 2006

Getting a job
by angela (Sep 27)

Hi
I'm thinking of going back to work. I have not worked for 13 years after having children. Now I have CML since Oct 03, has anyone had any problems in getting a job because of this illness?
Went
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Replies: 0

Last updated: 27 September 2006
sandy craine on 27 September 2006

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Replies: 0

Last updated: 27 September 2006

please sign this petition.
by sandy craine (Sep 27)

http://www.thepeoplespetition.org.uk/personaltestimony/
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Replies: 0

Last updated: 27 September 2006
sandy craine on 26 September 2006

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Replies: 0

Last updated: 26 September 2006

VX-680 and the T315I mutation.
by sandy craine (Sep 26)

this seems like good news for those with the extremely resistant mutation.... T315i i have taken the following post from jerry's site and not that they mention hammersmith as a potential trial site
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Replies: 0

Last updated: 26 September 2006
sandy craine on 25 September 2006

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Replies: 0

Last updated: 25 September 2006

EU Approval for Dasatinib - SPRYCEL
by sandy craine (Sep 25)

COMMITTEE FOR MEDICINAL PRODUCTS FOR HUMAN USE SUMMARY OF POSITIVE OPINION?for SPRYCEL International Nonproprietary Name (INN): dasatinib
On 21 September 2006 the EU EMEA Committee for Medicinal
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Replies: 0

Last updated: 25 September 2006
sandy craine on 25 September 2006

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Replies: 0

Last updated: 25 September 2006

Submitted by Tufty3 on Mon, 2006-09-04 12:08.
by sandy craine (Sep 25)

reposted from previous page....
Until now, I haven't felt inspired to get involved with a support group, especially after I was told not to go onto the internet, following my DX in Jan 2001! I was
Category: Uncategorised

Replies: 0

Last updated: 25 September 2006
frank thomas on 24 September 2006

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Replies: 0

Last updated: 24 September 2006

Career
by frank thomas (Sep 24)

Hello
I'm aged 59 and rececently diagnosed with CMl.My question is what proportion of patients resume their careers after commencing the Glivec treatment
Category: Uncategorised

Replies: 0

Last updated: 24 September 2006
Sarah B on 22 September 2006

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Replies: 0

Last updated: 22 September 2006

4 Years post Transplant
by Sarah B (Sep 22)

Hi Guys
Its been a while since I posted but just wanted to share with you that its 4 years since Steves transplant on Sunday wow how time has flown. Generally he is doing really well and life is
Category: Uncategorised

Replies: 0

Last updated: 22 September 2006