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suzanne on 22 September 2006

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Last updated: 22 September 2006

Could this be a symptom of Glevic?
by suzanne (Sep 22)

My husband is taking 400mg of Glevic and although it is very slowly bringing his pcr count down (it is currently 0.026) he has suffered quite a few side effects from it. These have included leg
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Replies: 0

Last updated: 22 September 2006
Sandra E on 21 September 2006

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Replies: 0

Last updated: 21 September 2006

new leukemia book
by Sandra E (Sep 21)

FYI, the primary author of the new leukemia book advertised on this site is my former doctor, Dr. Tariq Mughal. I'm sure we all know of Dr. Goldman, the second author. And the third author is Dr.
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Replies: 0

Last updated: 21 September 2006
David on 20 September 2006

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Replies: 0

Last updated: 20 September 2006

PCR and New Study
by David (Sep 20)

Two things:
Firstly, Val's latest PCR last week was 0.001 - we have taken to saying it is better than 007! We couldn't be happier about that result and we celebrated with a bottle of champagne!
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Replies: 0

Last updated: 20 September 2006
stevebroom on 19 September 2006

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Replies: 0

Last updated: 19 September 2006

Cardiotoxicity
by stevebroom (Sep 19)

I wonder if anyone can guide me to any articles concerning heart problems and glivec. I'd like to be well prepared when I next see my doctor. Also should it now be standard practise to check on
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Replies: 0

Last updated: 19 September 2006
sandy craine on 19 September 2006

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Replies: 0

Last updated: 19 September 2006

Seminar Agenda
by sandy craine (Sep 19)

CHRONIC MYELOID LEUKAEMIA

FIFTH NATIONAL SEMINAR FOR PATIENTS AND CARERS
Saturday 7th October 2006, Manchester Conference Centre
Registration from 9.30

Coffee and tea will be available
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Replies: 0

Last updated: 19 September 2006
sandy craine on 19 September 2006

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Replies: 0

Last updated: 19 September 2006

20 patient seminar places left-book now!
by sandy craine (Sep 19)

dr. guy lucas has told me that there are around 20 places left at the seminar in manchester (sat. october 7th) but you need to book up quickly so they can provide enough catering.
this years agenda
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Replies: 0

Last updated: 19 September 2006
Chris Wood on 14 September 2006

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Replies: 0

Last updated: 14 September 2006

Mutations?
by Chris Wood (Sep 14)

Hi everone

I was DX in May 2001 and I have enjoyed zero PCR for some time now thanks to Glevec. However my last couple of FISH results have showed my PCR to have risen to 12%. My
Category: Uncategorised

Replies: 0

Last updated: 14 September 2006
Bee on 16 September 2006

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Replies: 0

Last updated: 16 September 2006

cml conference
by Bee (Sep 16)

Hi All,
Whilst trying to book a room at the Days Hotel for the CML conference - I asked if there would be discount for conference delegates and the receptionist thought there usually was - but that
Category: Uncategorised

Replies: 0

Last updated: 16 September 2006
sandy craine on 14 September 2006

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Replies: 0

Last updated: 14 September 2006

Oral Desensitization Prevents Recurrent Imatinib Rash- Medscape
by sandy craine (Sep 14)

Oral Desensitization Prevents Recurrent Imatinib Rash
NEW YORK (Reuters Health) Aug 31 - Oral desensitization can be used to prevent the recurrent rash that prevents therapy with imatinib in some
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Replies: 0

Last updated: 14 September 2006
pyramid on 14 September 2006

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Replies: 0

Last updated: 14 September 2006

When to switch to dasatnib ?
by pyramid (Sep 14)

I am a 37 yo male who was diagnosed with CML in late march of this year. I started Gleevec 400 mg a day in April. After 3 months my FISH test went from 98.8 % to 16.8%. My MD said this was a "
Category: Uncategorised

Replies: 0

Last updated: 14 September 2006
sandy craine on 13 September 2006

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Replies: 0

Last updated: 13 September 2006

Jayne and Grace
by sandy craine (Sep 13)

dear jayne, congratulations on the birth of your lovely daughter grace and thanks for the photo's.

so glad all went well.

love,

sandy C ;o)
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Replies: 0

Last updated: 13 September 2006
andrew on 13 September 2006

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Replies: 0

Last updated: 13 September 2006

PCR Result
by andrew (Sep 13)

Hi All
Just a quick email to let you know that my last PCR test came back undetectable. This was a 4 log reduction on my starting levels.
This is now the 2nd undetectable in a row for me......I'm
Category: Uncategorised

Replies: 0

Last updated: 13 September 2006
CherylAnne on 12 September 2006

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Replies: 0

Last updated: 12 September 2006

Dr Giles Speaker tour - Canada
by CherylAnne (Sep 12)

Dear All,
There has been a change to Dr. Giles speaker tour, please note:
Montreal - Talk with Dr. Francis Giles - Montreal, CHANGED to October 18th, 2006

Please contact us to let us know your
Category: Uncategorised

Replies: 0

Last updated: 12 September 2006
Lesley on 11 September 2006

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Replies: 0

Last updated: 11 September 2006

Revaccination after stem cell tranplant
by Lesley (Sep 11)

Hi everyone it has been a while since i have posted. Glad to say I am 11 months post stem cell transplant (sibling donor) and I am strong. My white cell count is still requiring growth factor
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Replies: 0

Last updated: 11 September 2006
Pennie on 11 September 2006

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Replies: 0

Last updated: 11 September 2006

5 years since diagnosis
by Pennie (Sep 11)

Today is the fifth anniversary of my diagnosis. 11 sept 2001.

I must say thanks to Sandy and Elizabeth for all the help they gave me in my fight to get Gleevec. It was a long hard struggle
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Replies: 0

Last updated: 11 September 2006
KLBarker on 11 September 2006

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Replies: 0

Last updated: 11 September 2006

10 years and still No Zero
by KLBarker (Sep 11)

On Sunday it will be 10 years since I was diagnosed with CML, its an aniversary that at the start I was led to believe I would never make and I am thankful that I have. My QOL has in the main been
Category: Uncategorised

Replies: 0

Last updated: 11 September 2006
Claire on 8 September 2006

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Last updated: 8 September 2006

BMT
by Claire (Sep 8)

Hi,
My Dad is going into the Royal Free at the end of the month for a reduced dose BMT transplant after Glivec and AMN107 weren't successful. My Dad is 54 and has a non related donor but the doctors
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Replies: 0

Last updated: 8 September 2006
mariansy on 8 September 2006

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Replies: 0

Last updated: 8 September 2006

PCR Results
by mariansy (Sep 8)

Hi all
I now have my first PCR result - taken at King's at 6/7 months on Glivec. It reads 0.566%, which I know we should be pleased with. The question is how please?
ATB

Marian
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Replies: 0

Last updated: 8 September 2006
Elizabeth Rees on 8 September 2006

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Replies: 0

Last updated: 8 September 2006

Good luck to Jayne who is having her baby tomorrow !
by Elizabeth Rees (Sep 8)

Hope all goes really well Jayne, you must be feeling rather heavy by now ! Can't wait to hear the news. Ask Aaron to let us all know.

Lots of love to you all

Elizabeth
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Replies: 0

Last updated: 8 September 2006
arrowsc on 4 September 2006

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Replies: 0

Last updated: 4 September 2006

charity donation query
by arrowsc (Sep 4)

Hello all,
I was wondering if, given the groups new charity status, we could start to make a donation via a monthly direct debit,
Craig & Alison
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Replies: 0

Last updated: 4 September 2006