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amidouin on 18 October 2006

Category: Uncategorised

Replies: 0

Last updated: 18 October 2006

PCR one year
by amidouin (Oct 18)

Hello,

I had a letter from my onc this morning,she is satisfied because my PCR one year is under 10-3 reduction.I leave very close from Paris. I sign 1 year ago for the protocol SPIRIT,
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Replies: 0

Last updated: 18 October 2006
Suzie Q on 17 October 2006

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Replies: 0

Last updated: 17 October 2006

New member
by Suzie Q (Oct 17)

Hi, I was diagnosed in jan 06 and have only just discovered this support group on line. Can someone let me know what the abbreviations stand for im assuming BMB is bone marrow biopsy? Also i've
Category: Uncategorised

Replies: 0

Last updated: 17 October 2006
CRCRuth on 17 October 2006

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Replies: 0

Last updated: 17 October 2006

snoring
by CRCRuth (Oct 17)

I was diagnosed 3/04 during a routine blood test(17 wbc), after BMB(31 wbc) and started on 400 Gleevec and have been ever since. A BMB at 1yr showed no Luekemia cells. I go for a checkup with my
Category: Uncategorised

Replies: 0

Last updated: 17 October 2006
jjhollis100 on 17 October 2006

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Replies: 0

Last updated: 17 October 2006

1st PCR Results
by jjhollis100 (Oct 17)

Hello All
It's been a couple of months since my 1st post here.... just moved to London etc.
Last week was my first visit to Hammersmith hospital, where I was seen by Prof J.Apperley who took the
Category: Uncategorised

Replies: 0

Last updated: 17 October 2006
jamesyliu2002 on 17 October 2006

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Replies: 0

Last updated: 17 October 2006

HELP…My brother seems do NOT respond to Sprycel (Dasatinib), Help..
by jamesyliu2002 (Oct 17)

My brother (47 yo) who has been diagnosed as having CML for 10 years and has been on Chemotherapy and Immune therapy since then with first lines medications including hydroxyurea, busulphan and
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Replies: 0

Last updated: 17 October 2006
David on 14 October 2006

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Replies: 0

Last updated: 14 October 2006

New Drug
by David (Oct 14)

Doctor friends of ours from Australia have sent us a press cutting dated June 2006 from The Australian, a newspaper. It is a business news article about the share price of an Aussie drug company
Category: Uncategorised

Replies: 0

Last updated: 14 October 2006
ypoulton on 12 October 2006

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Replies: 0

Last updated: 12 October 2006

pcr results
by ypoulton (Oct 12)

Just got my latest results from HH my pcr is now at ZERO and I wanted to share this news with everyone it makes the side effects worth it for a zero result.

I enjoyed the seminar on Sat wished
Category: Uncategorised

Replies: 0

Last updated: 12 October 2006
kestrel on 12 October 2006

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Replies: 0

Last updated: 12 October 2006

Heart problems
by kestrel (Oct 12)

Hi everyone,

I first posted a few weeks ago, as I am caring for a 13 year old boy diagnosed with CML at the beginning of August. Since then we have been trying to get our heads round all the
Category: Uncategorised

Replies: 0

Last updated: 12 October 2006
sandy craine on 11 October 2006

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Replies: 0

Last updated: 11 October 2006

ENACT trials info.
by sandy craine (Oct 11)

elizabeth has managed to get the ENACT trails centre details on this page. (well done E on the technical front:o)))

just click on the box on top right of this page.

sandy
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Replies: 0

Last updated: 11 October 2006
Elizabeth Rees on 10 October 2006

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Replies: 0

Last updated: 10 October 2006

Tasigna [A MN107] and Sprycel [BMS ..] trials in the UK
by Elizabeth Rees (Oct 10)

In response from a post under the CML Seminar string -

you do not need any sponsorship to travel to Europe as these trials are all being held in the UK.

Trials are currently for those
Category: Uncategorised

Replies: 0

Last updated: 10 October 2006
Tufty3 on 10 October 2006

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Replies: 0

Last updated: 10 October 2006

Complimentary therapies
by Tufty3 (Oct 10)

Hi everyone
I just got back from my first CML National Seminar in Manchester, where I met some great people and heard a lot about Glivec and the new drugs (nilotinib and dasatinib).
I am currently a
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Replies: 0

Last updated: 10 October 2006
david.pillow on 9 October 2006

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Replies: 0

Last updated: 9 October 2006

Doing very well on Glivec
by david.pillow (Oct 9)

Today I was told that after 2 years 7 months on Glivec, the Hammersmith couldn't detect my CML at all - i.e. pcr=0.000%!
Almost better than that, for the last 6 months my energy levels are back to
Category: Uncategorised

Replies: 0

Last updated: 9 October 2006
pat preston on 8 October 2006

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Replies: 0

Last updated: 8 October 2006

CML Pre Seminar and Conference, Manchester. Oct.6th 7th. Manchester
by pat preston (Oct 8)

As usual the standard was high and I am indebted to all who were involved in making this possible. There were many young newly diagnosed CMLers and I hope they gained more courage to go forward
Category: Uncategorised

Replies: 0

Last updated: 8 October 2006
Coyney on 8 October 2006

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Replies: 0

Last updated: 8 October 2006

Do I/you need to have the flu jab???
by Coyney (Oct 8)

Dear all,
I'm 312 days post transplant now and just wondered if you think I'll have to have the flu jab this year or do you think it's slightly to early? My blood counts are now pretty much within
Category: Uncategorised

Replies: 0

Last updated: 8 October 2006
Vanessa Priest on 8 October 2006

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Replies: 0

Last updated: 8 October 2006

Hair Thinning
by Vanessa Priest (Oct 8)

Hello everyone

I have a question for you. My hair has been thinning now for 3 or 4 months. I want to know, how thin exactly is it likely to get? My onc tells me it won't grow back as thick
Category: Uncategorised

Replies: 0

Last updated: 8 October 2006
Steven D on 5 October 2006

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Replies: 0

Last updated: 5 October 2006

2 Tickets for the Seminar
by Steven D (Oct 5)

2 tickets have just become available for the seminar this weekend. If you would like to email me I can give you more info.
It is on a first come first serve basis.
Regards
Steven Davies

steven
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Replies: 0

Last updated: 5 October 2006
chris hoyle on 4 October 2006

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Replies: 0

Last updated: 4 October 2006

transplant ....what to do ?
by chris hoyle (Oct 4)

Hi everybody,

not been on for ages but need help and advice. Was diagnosed march 2004,taking 500mg glivec n doing ok but am really strugling with chronic fatigue now.I have a match with my
Category: Uncategorised

Replies: 0

Last updated: 4 October 2006
sal on 4 October 2006

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Replies: 0

Last updated: 4 October 2006

pcr
by sal (Oct 4)

Robs 15 month pcr came back this week at 8%. His 12 month was 145.He'd been on increased dose of 600mg only about 6 weeks when the latest test was taken. Rob would've liked a bigger decrease I think
Category: Uncategorised

Replies: 0

Last updated: 4 October 2006
elisar on 4 October 2006

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Replies: 0

Last updated: 4 October 2006

At Last!!
by elisar (Oct 4)

Just back from Hospital after receiving my latest bone marrow results. After 2 years and 4 months I have reached the magic number 0. I did ask what test they used and was told that it was done by
Category: Uncategorised

Replies: 0

Last updated: 4 October 2006
Nancy C. on 2 October 2006

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Replies: 0

Last updated: 2 October 2006

links to patient diaries????
by Nancy C. (Oct 2)

Do you still have links to patient diaries....I can't seem to find it.
Nancy C.
Category: Uncategorised

Replies: 0

Last updated: 2 October 2006