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Elizabeth Rees on 28 August 2006

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Replies: 0

Last updated: 28 August 2006

Marian Hollidge
by Elizabeth Rees (Aug 28)

It is with great sadness that I come to post this message that my dear friend Marian has lost her fight with this horrible disease. Marian passed away peacefully last week at home with her husband
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Replies: 0

Last updated: 28 August 2006
kathy on 26 August 2006

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Replies: 0

Last updated: 26 August 2006

new email
by kathy (Aug 26)

hi all,hope everyone is ok,ive changed my email address and lost all my old address,for those who i email would you please send me your email address to kathy.prudence@homecall.co.uk

thank
Category: Uncategorised

Replies: 0

Last updated: 26 August 2006
Coyney on 23 August 2006

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Replies: 0

Last updated: 23 August 2006

Eosinophil counts? PCR results.
by Coyney (Aug 23)

Hi all,
I remember someone mentioning eosinophil counts and their relation to GVHD, I think it might have been Sandy. I just wanted to find out what to look for as mine have been 0.1 now for the
Category: Uncategorised

Replies: 0

Last updated: 23 August 2006
Steven Allan on 23 August 2006

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Replies: 0

Last updated: 23 August 2006

Golden Glivec
by Steven Allan (Aug 23)

I read the following article on a train trip to London. I hadn't seen any mention of it on here:
http://www.dailymail.co.uk/pages/live/articles/news/news.html?in_article...
The jist of it:
'Golden
Category: Uncategorised

Replies: 0

Last updated: 23 August 2006
sandy craine on 23 August 2006

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Replies: 0

Last updated: 23 August 2006

message from CML Society -Canada
by sandy craine (Aug 23)

The message for your group:
Hello Everyone,
Just back from a lovely vacation on Martha's Vineyard. I think long walks on sunny beaches is much better than any drug!
Even though it is summer and we
Category: Uncategorised

Replies: 0

Last updated: 23 August 2006
Annie Kennedy on 22 August 2006

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Replies: 0

Last updated: 22 August 2006

Any best practice for monitoring poss cardiotoxicity?
by Annie Kennedy (Aug 22)

Have been following the discussions re poss link between glivec and heart problems. I appreciate that heart problems may be unlikely yet it does seem that for some people there may be problems
Category: Uncategorised

Replies: 0

Last updated: 22 August 2006
Jo on 22 August 2006

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Replies: 0

Last updated: 22 August 2006

The alternatives to Glivec
by Jo (Aug 22)

Hi everyone
First just a note to say how great the new site is looking.
Seceondly has anyone got any comments on either of the new drugs available? I was dx in December 03 - in March 04 I started
Category: Uncategorised

Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

Category: Uncategorised

Replies: 0

Last updated: 22 August 2006

Back by popular demand!
by admin (Aug 22)

As promised, the forum is back in it's original format.
Please direct any technical questions you might have to: techsupport_forum-AT-cmlsupport.org.uk
As always, this site is best viewed with the
Category: Uncategorised

Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

Category: Uncategorised

Replies: 0

Last updated: 22 August 2006

Forum Test 5
by admin (Aug 22)

This is a test. Testing 123.
Category: Uncategorised

Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

Category: Uncategorised

Replies: 0

Last updated: 22 August 2006

Forum Test 4
by admin (Aug 22)

This is a test. Testing 123.
Category: Uncategorised

Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

Category: Uncategorised

Replies: 0

Last updated: 22 August 2006

Forum Test 3
by admin (Aug 22)

This is a test. Testing 123.
Category: Uncategorised

Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

Category: Uncategorised

Replies: 0

Last updated: 22 August 2006

Forum Test 2
by admin (Aug 22)

This is a test. Testing 123.
Category: Uncategorised

Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

Category: Uncategorised

Replies: 0

Last updated: 22 August 2006

Forum Test 1
by admin (Aug 22)

This is a test. Testing 123.
Category: Uncategorised

Replies: 0

Last updated: 22 August 2006
Barbs on 20 August 2006

Category: Uncategorised

Replies: 0

Last updated: 20 August 2006

PCR result
by Barbs (Aug 20)

Dear all,

hope you're all Ok, just got back from holiday, my PCR result was waiting for me - undetectable!!

Moreover my T8 was down from 62 to 20%.

Congratulations to Sandy,
Category: Uncategorised

Replies: 0

Last updated: 20 August 2006
Des on 17 August 2006

Category: Uncategorised

Replies: 0

Last updated: 17 August 2006

eye problems
by Des (Aug 17)

After 3 years on Glivec I have had a lumpiness on the white of my eye, which seems to be a bit squidgy. My eye has now become red and possibly infected. My GP seems to think that the CML may be
Category: Uncategorised

Replies: 0

Last updated: 17 August 2006
jaynelister on 17 August 2006

Category: Uncategorised

Replies: 0

Last updated: 17 August 2006

Aaron's A Level Results
by jaynelister (Aug 17)

Hi everyone, Just wanted to share Aaron's good news with you all. He has got the A Level grades that he wanted to get him into his University of choice - Aberystwyth. He achieved a B,C,D & D.
Im
Category: Uncategorised

Replies: 0

Last updated: 17 August 2006
Sandra E on 16 August 2006

Category: Uncategorised

Replies: 0

Last updated: 16 August 2006

PCR finally back down
by Sandra E (Aug 16)

After much difficulty, I finally got the PCR back that was done over a month ago. (I think Genzyme has a bad FAX number for my doctor.)
Anyway, after the increase to 600 mg Gleevec back in
Category: Uncategorised

Replies: 0

Last updated: 16 August 2006
Steven D on 16 August 2006

Category: Uncategorised

Replies: 0

Last updated: 16 August 2006

2 years today since DX
by Steven D (Aug 16)

Today is the second anniversary to the day since I was diagnosed with CML.
Coincidentally I also had my HH appointment where Eduardo told me my PCR was down to 0.13. Slowly it is coming down.
Category: Uncategorised

Replies: 0

Last updated: 16 August 2006
sharon morris on 16 August 2006

Category: Uncategorised

Replies: 0

Last updated: 16 August 2006

CML after pregnancy
by sharon morris (Aug 16)

Hi,

Hope everybody is well. I thought that I would update after my pregnancy. My baby girl is exactly 7 months now and crawling! A right activity bundle...seems fascinated with plant pots! She
Category: Uncategorised

Replies: 0

Last updated: 16 August 2006
mariansy on 16 August 2006

Category: Uncategorised

Replies: 0

Last updated: 16 August 2006

Biopsy resullts
by mariansy (Aug 16)

Hi all
I am one happy bunny today as have just received my 6/7 month biopsy results, bloods all within normal range for me, and marrow showing no excess blasts or philadelpia chromosomes.
My PCR
Category: Uncategorised

Replies: 0

Last updated: 16 August 2006

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