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Nancy C. on 2 October 2006

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Last updated: 2 October 2006

links to patient diaries????
by Nancy C. (Oct 2)

Do you still have links to patient diaries....I can't seem to find it.
Nancy C.
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Last updated: 2 October 2006
jamesyliu2002 on 30 September 2006

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Last updated: 30 September 2006

Can Aanyone tell me how to order the Sprycel from Canada ?
by jamesyliu2002 (Sep 30)

Can Anyone tell me how to order the Sprycel from Canada ?
we live in US and it is too expansive for us to purchase this new hope medication for my brother. Having heard that it would be much cheaper
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Replies: 0

Last updated: 30 September 2006
Des on 30 September 2006

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Last updated: 30 September 2006

eye problems
by Des (Sep 30)

A while ago I asked for advice about a squidgy lump on the white of my eye. After reading your replies I felt it may be a pterygium, as it sounded a bit similar.
The other eye has now developed a
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Replies: 0

Last updated: 30 September 2006
sandy craine on 29 September 2006

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Last updated: 29 September 2006

Low White Blood Cell count - neutropenia while on Gleevec
by sandy craine (Sep 29)

this post was hidden in another string at the bottom of the page. also as it was posted by a non registered user (you need to register and get a password before you can post) it was waiting for a
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Replies: 0

Last updated: 29 September 2006
susanwilson on 28 September 2006

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Last updated: 28 September 2006

Feeling really down
by susanwilson (Sep 28)

Hi, its been quite a while since I visited the Forum but today I need some help after visiting my consultant this morning for the results of my 12 month bmb and a general discussion on how my
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Replies: 0

Last updated: 28 September 2006
angela on 27 September 2006

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Last updated: 27 September 2006

Getting a job
by angela (Sep 27)

Hi
I'm thinking of going back to work. I have not worked for 13 years after having children. Now I have CML since Oct 03, has anyone had any problems in getting a job because of this illness?
Went
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Replies: 0

Last updated: 27 September 2006
sandy craine on 27 September 2006

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Last updated: 27 September 2006

please sign this petition.
by sandy craine (Sep 27)

http://www.thepeoplespetition.org.uk/personaltestimony/
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Replies: 0

Last updated: 27 September 2006
sandy craine on 26 September 2006

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Last updated: 26 September 2006

VX-680 and the T315I mutation.
by sandy craine (Sep 26)

this seems like good news for those with the extremely resistant mutation.... T315i i have taken the following post from jerry's site and not that they mention hammersmith as a potential trial site
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Replies: 0

Last updated: 26 September 2006
sandy craine on 25 September 2006

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Replies: 0

Last updated: 25 September 2006

EU Approval for Dasatinib - SPRYCEL
by sandy craine (Sep 25)

COMMITTEE FOR MEDICINAL PRODUCTS FOR HUMAN USE SUMMARY OF POSITIVE OPINION?for SPRYCEL International Nonproprietary Name (INN): dasatinib
On 21 September 2006 the EU EMEA Committee for Medicinal
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Last updated: 25 September 2006
sandy craine on 25 September 2006

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Last updated: 25 September 2006

Submitted by Tufty3 on Mon, 2006-09-04 12:08.
by sandy craine (Sep 25)

reposted from previous page....
Until now, I haven't felt inspired to get involved with a support group, especially after I was told not to go onto the internet, following my DX in Jan 2001! I was
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Replies: 0

Last updated: 25 September 2006
frank thomas on 24 September 2006

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Last updated: 24 September 2006

Career
by frank thomas (Sep 24)

Hello
I'm aged 59 and rececently diagnosed with CMl.My question is what proportion of patients resume their careers after commencing the Glivec treatment
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Last updated: 24 September 2006
Sarah B on 22 September 2006

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Last updated: 22 September 2006

4 Years post Transplant
by Sarah B (Sep 22)

Hi Guys
Its been a while since I posted but just wanted to share with you that its 4 years since Steves transplant on Sunday wow how time has flown. Generally he is doing really well and life is
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Replies: 0

Last updated: 22 September 2006
suzanne on 22 September 2006

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Last updated: 22 September 2006

Could this be a symptom of Glevic?
by suzanne (Sep 22)

My husband is taking 400mg of Glevic and although it is very slowly bringing his pcr count down (it is currently 0.026) he has suffered quite a few side effects from it. These have included leg
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Replies: 0

Last updated: 22 September 2006
Sandra E on 21 September 2006

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Last updated: 21 September 2006

new leukemia book
by Sandra E (Sep 21)

FYI, the primary author of the new leukemia book advertised on this site is my former doctor, Dr. Tariq Mughal. I'm sure we all know of Dr. Goldman, the second author. And the third author is Dr.
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Replies: 0

Last updated: 21 September 2006
David on 20 September 2006

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Last updated: 20 September 2006

PCR and New Study
by David (Sep 20)

Two things:
Firstly, Val's latest PCR last week was 0.001 - we have taken to saying it is better than 007! We couldn't be happier about that result and we celebrated with a bottle of champagne!
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Replies: 0

Last updated: 20 September 2006
stevebroom on 19 September 2006

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Last updated: 19 September 2006

Cardiotoxicity
by stevebroom (Sep 19)

I wonder if anyone can guide me to any articles concerning heart problems and glivec. I'd like to be well prepared when I next see my doctor. Also should it now be standard practise to check on
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Replies: 0

Last updated: 19 September 2006
sandy craine on 19 September 2006

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Last updated: 19 September 2006

Seminar Agenda
by sandy craine (Sep 19)

CHRONIC MYELOID LEUKAEMIA

FIFTH NATIONAL SEMINAR FOR PATIENTS AND CARERS
Saturday 7th October 2006, Manchester Conference Centre
Registration from 9.30

Coffee and tea will be available
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Replies: 0

Last updated: 19 September 2006
sandy craine on 19 September 2006

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Last updated: 19 September 2006

20 patient seminar places left-book now!
by sandy craine (Sep 19)

dr. guy lucas has told me that there are around 20 places left at the seminar in manchester (sat. october 7th) but you need to book up quickly so they can provide enough catering.
this years agenda
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Replies: 0

Last updated: 19 September 2006
Chris Wood on 14 September 2006

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Last updated: 14 September 2006

Mutations?
by Chris Wood (Sep 14)

Hi everone

I was DX in May 2001 and I have enjoyed zero PCR for some time now thanks to Glevec. However my last couple of FISH results have showed my PCR to have risen to 12%. My
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Replies: 0

Last updated: 14 September 2006
Bee on 16 September 2006

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Last updated: 16 September 2006

cml conference
by Bee (Sep 16)

Hi All,
Whilst trying to book a room at the Days Hotel for the CML conference - I asked if there would be discount for conference delegates and the receptionist thought there usually was - but that
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Replies: 0

Last updated: 16 September 2006