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Apryl on 30 August 2006

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Last updated: 30 August 2006

Q. ITCHY RASH?
by Apryl (Aug 30)

I have suddenly come out in a very itchy red rash with large red spots, mostly where my clothes are tighter, under bra straps etc., but its over the trunk of my body and up my neck. Doc thinks it
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Replies: 0

Last updated: 30 August 2006
Elizabeth Rees on 28 August 2006

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Last updated: 28 August 2006

Marian Hollidge
by Elizabeth Rees (Aug 28)

It is with great sadness that I come to post this message that my dear friend Marian has lost her fight with this horrible disease. Marian passed away peacefully last week at home with her husband
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Replies: 0

Last updated: 28 August 2006
kathy on 26 August 2006

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Last updated: 26 August 2006

new email
by kathy (Aug 26)

hi all,hope everyone is ok,ive changed my email address and lost all my old address,for those who i email would you please send me your email address to kathy.prudence@homecall.co.uk

thank
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Replies: 0

Last updated: 26 August 2006
Coyney on 23 August 2006

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Last updated: 23 August 2006

Eosinophil counts? PCR results.
by Coyney (Aug 23)

Hi all,
I remember someone mentioning eosinophil counts and their relation to GVHD, I think it might have been Sandy. I just wanted to find out what to look for as mine have been 0.1 now for the
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Replies: 0

Last updated: 23 August 2006
Steven Allan on 23 August 2006

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Replies: 0

Last updated: 23 August 2006

Golden Glivec
by Steven Allan (Aug 23)

I read the following article on a train trip to London. I hadn't seen any mention of it on here:
http://www.dailymail.co.uk/pages/live/articles/news/news.html?in_article...
The jist of it:
'Golden
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Replies: 0

Last updated: 23 August 2006
sandy craine on 23 August 2006

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Replies: 0

Last updated: 23 August 2006

message from CML Society -Canada
by sandy craine (Aug 23)

The message for your group:
Hello Everyone,
Just back from a lovely vacation on Martha's Vineyard. I think long walks on sunny beaches is much better than any drug!
Even though it is summer and we
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Replies: 0

Last updated: 23 August 2006
Annie Kennedy on 22 August 2006

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Last updated: 22 August 2006

Any best practice for monitoring poss cardiotoxicity?
by Annie Kennedy (Aug 22)

Have been following the discussions re poss link between glivec and heart problems. I appreciate that heart problems may be unlikely yet it does seem that for some people there may be problems
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Replies: 0

Last updated: 22 August 2006
Jo on 22 August 2006

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Replies: 0

Last updated: 22 August 2006

The alternatives to Glivec
by Jo (Aug 22)

Hi everyone
First just a note to say how great the new site is looking.
Seceondly has anyone got any comments on either of the new drugs available? I was dx in December 03 - in March 04 I started
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Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

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Replies: 0

Last updated: 22 August 2006

Back by popular demand!
by admin (Aug 22)

As promised, the forum is back in it's original format.
Please direct any technical questions you might have to: techsupport_forum-AT-cmlsupport.org.uk
As always, this site is best viewed with the
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Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

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Last updated: 22 August 2006

Forum Test 5
by admin (Aug 22)

This is a test. Testing 123.
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Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

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Last updated: 22 August 2006

Forum Test 4
by admin (Aug 22)

This is a test. Testing 123.
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Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

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Last updated: 22 August 2006

Forum Test 3
by admin (Aug 22)

This is a test. Testing 123.
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Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

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Replies: 0

Last updated: 22 August 2006

Forum Test 2
by admin (Aug 22)

This is a test. Testing 123.
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Replies: 0

Last updated: 22 August 2006
admin on 22 August 2006

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Replies: 0

Last updated: 22 August 2006

Forum Test 1
by admin (Aug 22)

This is a test. Testing 123.
Category: Uncategorised

Replies: 0

Last updated: 22 August 2006
Barbs on 20 August 2006

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Replies: 0

Last updated: 20 August 2006

PCR result
by Barbs (Aug 20)

Dear all,

hope you're all Ok, just got back from holiday, my PCR result was waiting for me - undetectable!!

Moreover my T8 was down from 62 to 20%.

Congratulations to Sandy,
Category: Uncategorised

Replies: 0

Last updated: 20 August 2006
Des on 17 August 2006

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Replies: 0

Last updated: 17 August 2006

eye problems
by Des (Aug 17)

After 3 years on Glivec I have had a lumpiness on the white of my eye, which seems to be a bit squidgy. My eye has now become red and possibly infected. My GP seems to think that the CML may be
Category: Uncategorised

Replies: 0

Last updated: 17 August 2006
jaynelister on 17 August 2006

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Replies: 0

Last updated: 17 August 2006

Aaron's A Level Results
by jaynelister (Aug 17)

Hi everyone, Just wanted to share Aaron's good news with you all. He has got the A Level grades that he wanted to get him into his University of choice - Aberystwyth. He achieved a B,C,D & D.
Im
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Replies: 0

Last updated: 17 August 2006
Sandra E on 16 August 2006

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Last updated: 16 August 2006

PCR finally back down
by Sandra E (Aug 16)

After much difficulty, I finally got the PCR back that was done over a month ago. (I think Genzyme has a bad FAX number for my doctor.)
Anyway, after the increase to 600 mg Gleevec back in
Category: Uncategorised

Replies: 0

Last updated: 16 August 2006
Steven D on 16 August 2006

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Replies: 0

Last updated: 16 August 2006

2 years today since DX
by Steven D (Aug 16)

Today is the second anniversary to the day since I was diagnosed with CML.
Coincidentally I also had my HH appointment where Eduardo told me my PCR was down to 0.13. Slowly it is coming down.
Category: Uncategorised

Replies: 0

Last updated: 16 August 2006
sharon morris on 16 August 2006

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Replies: 0

Last updated: 16 August 2006

CML after pregnancy
by sharon morris (Aug 16)

Hi,

Hope everybody is well. I thought that I would update after my pregnancy. My baby girl is exactly 7 months now and crawling! A right activity bundle...seems fascinated with plant pots! She
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Replies: 0

Last updated: 16 August 2006

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