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sandy craine on 30 June 2011

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Last updated: 30 June 2011

Using the Web to understand your medical condition
by sandy craine (Jun 30)

Andrew Schorr gives an interesting interview ... Andrew is someone I particularly admire for his use of the internet to help patients- he himself was diagnosed with CLL some years ago and set up the
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Last updated: 30 June 2011
Steven Davies on 9 June 2011

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Last updated: 9 June 2011

Granada Reports today
by Steven Davies (Jun 9)

http://www.itv.com/granada/cancer-drug-protest68289/
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Last updated: 9 June 2011
michael on 9 June 2011

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Last updated: 9 June 2011

Exjade
by michael (Jun 9)

Anybody taking Exjade and is your PCT funding it?(of interest to people who have lots of blood transfusions)
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Last updated: 9 June 2011
SwanValleySue on 4 June 2011

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Last updated: 4 June 2011

Australian CML Survey
by SwanValleySue (Jun 4)

Hi all
I know there are a number of Australians who receive invaluable information from this forum as I do.
The Australian Leukaemia Foundation has launched a CML Client Survey however it is for
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Replies: 0

Last updated: 4 June 2011
sandy craine on 25 May 2011

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Last updated: 25 May 2011

EUTOS Score is better predictor for progression free survival in CML treated with IM
by sandy craine (May 25)

Predicting complete cytogenetic response and subsequent progression-free survival in 2060 patients with CML on imatinib treatment: the EUTOS score

http://bloodjournal.hematologylibrary.
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Replies: 0

Last updated: 25 May 2011
ni2i on 19 May 2011

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Replies: 0

Last updated: 19 May 2011

CFM radio
by ni2i (May 19)

Just to let everyone know, myself and my cousin have just been interviewed for CFM radio in regards to the NICE campaign. They have asked NICE for comments of which they replied "NO COMMENT
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Replies: 0

Last updated: 19 May 2011
ian hinley on 17 May 2011

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Replies: 0

Last updated: 17 May 2011

New trials - at least someone sees the value of new drugs...
by ian hinley (May 17)

http://www.bbc.co.uk/news/health-13416237
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Replies: 0

Last updated: 17 May 2011
sandy craine on 12 May 2011

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Last updated: 12 May 2011

OHSU, cancer patients celebrate ten years of Gleevec
by sandy craine (May 12)

Read this article about Brian Druker and imatinib (STI571) ten years on.....

http://www.k103.com/cc-common/news/sections/newsarticle.html?feed=123543&article=8554130#ixzz1M5mPeSLz
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Replies: 0

Last updated: 12 May 2011
sandy craine on 12 May 2011

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Last updated: 12 May 2011

anyone out there who has been refused access to dasatinib or nilotinib?
by sandy craine (May 12)

Please contact me if you are having problems getting or been refused access to either on of the 2nd generation TKI's- and you are willing to tell your story to national paper

Sandy
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Replies: 0

Last updated: 12 May 2011
sandy craine on 11 May 2011

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Replies: 0

Last updated: 11 May 2011

Parliamentary Questions- suggestion for your MP
by sandy craine (May 11)

Ask your MP to ask a parliamentary question such as.....

To ask the Secretary of State for Health what assessment his Department has made of the extent to which the National Institute for Health
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Replies: 0

Last updated: 11 May 2011
sandy craine on 11 May 2011

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Replies: 0

Last updated: 11 May 2011

email this request to all of your contacts
by sandy craine (May 11)

Please consider sending the following message in an email to all those in your contacts box. I will help to drive traffic to the petition.

Thanks, Sandy
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Replies: 0

Last updated: 11 May 2011
sandy craine on 10 May 2011

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Last updated: 10 May 2011

'Write To Them' - easy to use resource for contacting MP's
by sandy craine (May 10)

Contact your Councillors, MP, MEPs, MSPs, or

Northern Ireland, Welsh and London AMs for free

http://www.writetothem.com/
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Replies: 0

Last updated: 10 May 2011
sandy craine on 9 May 2011

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Replies: 0

Last updated: 9 May 2011

Responding directly to NICE
by sandy craine (May 9)

Responding directly to NICE

NICE as you know do not accept letters from individual members of the public, but you can visit their website and complete a commentary on the Appraisal Committee
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Replies: 0

Last updated: 9 May 2011
sandy craine on 9 May 2011

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Replies: 0

Last updated: 9 May 2011

A day to remember-A victory in the war against cancer
by sandy craine (May 9)

I think this is an opportune moment for reflection- given what we are now facing in the UK- I thought it might be good to take a look at the article below about Brian Druker MD who's
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Replies: 0

Last updated: 9 May 2011
sandy craine on 1 May 2011

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Last updated: 1 May 2011

Dasatinib- posted by Lee Loughran
by sandy craine (May 1)

Dasatinib
Submitted by LeeLoughran on Sat, 30/04/2011 - 04:27.

My 7 year old son (who had ALL PH+) has been on Dasatinib since his last bone marrow transplant (two years ago). It
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Replies: 0

Last updated: 1 May 2011
ruddoug09 on 30 April 2011

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Last updated: 30 April 2011

A charity challenge!
by ruddoug09 (Apr 30)

I was diagnosed with CML in October 2010 and since then I've decided to spend most of this year raising money for Leukaemia & Lymphoma Research (www.beatbloodcancers.org). Having
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Replies: 0

Last updated: 30 April 2011
sandy craine on 28 April 2011

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Last updated: 28 April 2011

NICE ACD
by sandy craine (Apr 28)

On May 6th, NICE will publish their recommendation (ACD) for the MTA (multi technology appraisal) of dasatinib, nilotinib and high dose imatinib (600-800mg) for treatment of imatinib resistant CML
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Replies: 0

Last updated: 28 April 2011
sandy craine on 27 April 2011

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Last updated: 27 April 2011

ecancermedicalscience
by sandy craine (Apr 27)

http://www.ecancermedicalscience.com/

watch the following video interview with Giora Scharf on non-adherence in TKI therapy

http://www.ecancermedicalscience.com/tv/biography.asp?vid=879
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Replies: 0

Last updated: 27 April 2011
sandy craine on 27 April 2011

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Last updated: 27 April 2011

Leukemia Insights : Vol. 16, No. 1 Spring 2011 New Strategies in Chronic Myelogenous Leukemia
by sandy craine (Apr 27)

http://mdanderson.bm23.com/public/?q=preview_message&fn=Link&t=1&ssid=5862&id=kmxaqec3zqfgmwxb9rnjevyk3ni1t&id2=9s9sei2nuf2m0ftrm1t4ydtwnv49o&subscriber_id=
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Replies: 0

Last updated: 27 April 2011
sandy craine on 15 April 2011

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Last updated: 15 April 2011

Good resource for searching the internet
by sandy craine (Apr 15)

Take a look at the following link - this is a new resource for cancer patients finding reliable sources of information on the internet. I greatly admire Andrew Schorr who is the founder of patient
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Replies: 0

Last updated: 15 April 2011