You are here

Forum

sandy craine on 17 November 2010

Category: Uncategorised

Replies: 0

Last updated: 17 November 2010

Urgent request from Daily Mail
by sandy craine (Nov 17)

Dear All,

I have just had a request from a journalist who is writing an article on lack of adherence to therapy in the CML patient population. She wants to talk with a patient who is willing to
Category: Uncategorised

Replies: 0

Last updated: 17 November 2010
sandy craine on 9 November 2010

Category: Uncategorised

Replies: 0

Last updated: 9 November 2010

52nd ASH meeting, Orlando December 4th-7th 2010- Abstracts now available
by sandy craine (Nov 9)

take a look at this link to some of the CML sessions/abstracts that might be of interest.

http://ash.confex.com/ash/2010/webprogram/Session2872.html
Category: Uncategorised

Replies: 0

Last updated: 9 November 2010
sandy craine on 9 November 2010

Category: Uncategorised

Replies: 0

Last updated: 9 November 2010

Green Tea discussion-Beth
by sandy craine (Nov 9)

Dear Beth and Ian,

On your discussion thread about Green Tea, there was a spam post which I had to delete. This somehow also deleted the legitimate posts which I am very sorry about.
Category: Uncategorised

Replies: 0

Last updated: 9 November 2010
sandy craine on 9 November 2010

Category: Uncategorised

Replies: 0

Last updated: 9 November 2010

Cellular 'alchemy' transforms skin into blood- Nature 7/11/10
by sandy craine (Nov 9)

Published online 7 November 2010 | Nature | doi:10.1038/news.2010.588

News
Cellular 'alchemy' transforms skin into blood

Direct conversion of cell types could
Category: Uncategorised

Replies: 0

Last updated: 9 November 2010
sandy craine on 4 November 2010

Category: Uncategorised

Replies: 0

Last updated: 4 November 2010

Dasatinib Approved for Early Chronic Myeloid Leukemia
by sandy craine (Nov 4)

Dasatinib Approved for Early Chronic Myeloid Leukemia

Elsevier Global Medical News. 2010 Oct 28, E Mechcatie
The approval of dasatinib, an oral kinase inhibitor, has been expanded to include
Category: Uncategorised

Replies: 0

Last updated: 4 November 2010
sandy craine on 4 November 2010

Category: Uncategorised

Replies: 0

Last updated: 4 November 2010

STIM trial- data
by sandy craine (Nov 4)

Discontinuation of Imatinib in Patients With Chronic Myeloid Leukaemia Who Have Maintained Complete Molecular Remission for at Least 2 Years: The Prospective, Multicentre Stop Imatinib (STIM) Trial
Category: Uncategorised

Replies: 0

Last updated: 4 November 2010
sandy craine on 3 November 2010

Category: Uncategorised

Replies: 0

Last updated: 3 November 2010

ENEST trial?
by sandy craine (Nov 3)

Is there anyone who is part of the ENEST trials of nilotinib on this forum? If so would you be willing to speak with media about your experiences with nilotinib as first line therapy?

If so
Category: Uncategorised

Replies: 0

Last updated: 3 November 2010
johnw1001 on 31 October 2010

Category: Uncategorised

Replies: 0

Last updated: 31 October 2010

Governments proposals for new commissioning arrangements
by johnw1001 (Oct 31)

Fellow CML patients and carers

Many of us will have been following proposals that GP consortia will be commissioning care and treatment and be responsible for funding of the same-the DH
Category: Uncategorised

Replies: 0

Last updated: 31 October 2010
johnw1001 on 31 October 2010

Category: Uncategorised

Replies: 0

Last updated: 31 October 2010

Government inviting consultations on the new Cancer Drugs Fund
by johnw1001 (Oct 31)

Go to

www.dh.gov.uk/en/Consultations/Liveconsultations/DH_120834

The closing date is mid January 2011

I presume we need to safeguard our position in the event that the NICE final guidance on
Category: Uncategorised

Replies: 0

Last updated: 31 October 2010
Barbs on 11 October 2010

Category: Uncategorised

Replies: 0

Last updated: 11 October 2010

Interesting link
by Barbs (Oct 11)

Just received this link from my haematologist - it seems very interesting & it partly run by John Goldman; maybe we could put in the links section :

http://www.cml-foundation.org/
Category: Uncategorised

Replies: 0

Last updated: 11 October 2010
cmlblogger on 4 October 2010

Category: Uncategorised

Replies: 0

Last updated: 4 October 2010

A new baby fathered on Glivec
by cmlblogger (Oct 4)

Just wanted to let everyone know that our baby has been born a couple of weeks back

Noah Samuel born At 11:37pm on 16th September 2010, 7 pounds and 9 ounces, all doing well some pictures from
Category: Uncategorised

Replies: 0

Last updated: 4 October 2010
sandy craine on 27 September 2010

Category: Uncategorised

Replies: 0

Last updated: 27 September 2010

CHMP gives positive opinion on Tasigna in newly diagnosed CML
by sandy craine (Sep 27)

On 23 September 2010 the Committee for Medicinal Products for Human Use (CHMP) adopted a positive opinion recommending a variation to the terms of the marketing authorisation for the
Category: Uncategorised

Replies: 0

Last updated: 27 September 2010
chrissie on 24 September 2010

Category: Uncategorised

Replies: 0

Last updated: 24 September 2010

Chlorine in swimming poola
by chrissie (Sep 24)

Hi everyone

Just reached my one year anniversary from dx and had a (very painful) BMB on Wednesday - still feeling the effects. Thank goodness a friend told me to ask for Entonox this year as
Category: Uncategorised

Replies: 0

Last updated: 24 September 2010
chrissbb on 23 September 2010

Category: Uncategorised

Replies: 0

Last updated: 23 September 2010

Yorkshire Region CML Support group meeting.
by chrissbb (Sep 23)

The next Yorkshire region CML support group meeting shall be on Monday 18th of October.

Dr Smith shall be doing an informative talk on the European School of Haematology Workshop update
Category: Uncategorised

Replies: 0

Last updated: 23 September 2010
Carol on 31 August 2010

Category: Uncategorised

Replies: 0

Last updated: 31 August 2010

PATIENT / CARER SUPPORT GROUP MEETING AT HAMMERSMITH ON SATURDAY 18TH SEPTEMBER
by Carol (Aug 31)

Patient Support Group Meeting at Hammersmith Hospital

EVERYONE WELCOME

LEUKAEMIA PATIENTS SUPPORT GROUP

CATHERINE LEWIS CENTRE RECEPTION

HAMMERSMITH HOSPITAL

Du
Category: Uncategorised

Replies: 0

Last updated: 31 August 2010
sandy craine on 24 August 2010

Category: Uncategorised

Replies: 0

Last updated: 24 August 2010

Raising the profile of Rare Cancers
by sandy craine (Aug 24)

I am currently involved with the ECPC Rare Cancers Action Group which is a new advocacy group organised by rare cancer advocates in Europe. We are developing ways of raising the profile of rare
Category: Uncategorised

Replies: 0

Last updated: 24 August 2010
cmlblogger on 30 July 2010

Category: Uncategorised

Replies: 0

Last updated: 30 July 2010

New Lab Test Could Identify Imatinib Resistance
by cmlblogger (Jul 30)

http://www.sciencedaily.com/releases/2010/07/100729074903.htm

"Scientists in Japan may have developed a way to accurately predict those patients who will resist treatment with imatinib,
Category: Uncategorised

Replies: 0

Last updated: 30 July 2010
sandy craine on 13 July 2010

Category: Uncategorised

Replies: 0

Last updated: 13 July 2010

LLS awards Research Grants
by sandy craine (Jul 13)

The Leukemia & Lymphoma Society Awards Two Major Grants to Acclaimed Researchers

LLS Specialized Center of Research Program Surpasses $210 Million
Category: Uncategorised

Replies: 0

Last updated: 13 July 2010
sandy craine on 5 July 2010

Category: Uncategorised

Replies: 0

Last updated: 5 July 2010

Nilotinib- the challenges from the patients point of view
by sandy craine (Jul 5)

This is a request for all CML patients who are currently being treated with nilotinib. I am due to attend a meeting in mid July (along with 2 other European Patient Advocates) with Novartis Europe
Category: Uncategorised

Replies: 0

Last updated: 5 July 2010
sandy craine on 2 July 2010

Category: Uncategorised

Replies: 0

Last updated: 2 July 2010

deferral of FAD- MTA dasatinib and nilotinb
by sandy craine (Jul 2)

Dear All,

As expected, I have just heard that NICE have decided to defer the FAD on dasatinib/nilotinib for imatinib intolerance until they have determined their guidance for the IM
Category: Uncategorised

Replies: 0

Last updated: 2 July 2010