Prof. John Goldman and the directors of iCMLf (international CML foundation) have given me permission to share these educational videos with you. Unfortunately I am not allowed to embed the videos on our Video page, but nevertheless I thought it was worthwhile to share them with the patient community, so I will keep them here of the Forum. Professor Apperley talks about Pregnancy and CML: #Effect of CML and its treatments on fertility of women and men #Effect of pregnancy on CML and its treatment #Effect of CML and CML treatments on pregnancy #Timing of pregnancy in relation to diagnosis of CML #Case studies of pregnancies http://cml-foundation.org/index.php/virtual-education-program/52-vep/english/182-vep-apperley-pregnancy __________________________________________________________________________________________________ Dr Delphine Rae MD, PHD of Hôpital Saint-Louis, Paris, France talks about discontinuation of TKI therapy in CML: #Can we safely stop TKI therapies? #Experience from the STOP trials Delphine Rea, Hôpital Saint-Louis, Paris, France http://cml-foundation.org/index.php/virtual-education-program/52-vep/english/183-vep-rea-stop
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2 Videos: PREGNANCY in CML and DISCONTINUATION of TKI therapy
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Hi there, I have CML and was diagnosed in June of 2003 at the age of 14. I have been taking Gleevec/Imatinib since the day I was diagnosed. I am now 26 and thinking of my future and would like to start planning a family one day.
Are there any studies/reports or other women who have already been diagnosed and wanting to become pregnant?
Did the patient receive/switch to another treatment? What were the outcomes? Side effects? Was there a full term pregnancy? Was the baby healthy? Were the mother and/or baby not effected by the treatments?
If you could please answer my questions or redirect me to a source I could talk to about my predicament that would be amazing.
I am trying to do my research on this subject - and all the reports/incidences I have been reading are women who were already pregnant and then diagnosed.
Please and thank you!
- A woman's wish
Hi mgrattan, I planned my pregnancy after being diagnosed, if you are still hoping to talk to someone if you let me know your email address I could email and try and answer any questions you have. My pregnancy went well, I have a healthy girl and I am doing well hope this gives you some hope and I wish you all the best x
Hie CS, I am also interested please contact me on - email deleted-
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