I was diax may 2012 with cml,fibrosis and monosomy 7.As like most of you went in through a and e because of enlarged spleen.Gp visits prior were diax as sinusitis ,lock jaw ,nasal allergy,hip bone and menopause.Too many gp visits for me in 12months as only went once in a blue moon.Under hosp too for hip and lock jaw.No blood tests taken,just x rays.
I was never told about monosmy 7 being a poor prognastic value.I googled 1day and next visit asked for copies of all my results. I tried
Imatinib but only got bloods to normal,bcrabl reduced by 2%.Nloitinib got bcrabl down to 12%..Blood counts suffering ,neuts 0.2, plats21 now.So of to liverpool end of may anx just a year of cml, for mini transplant.Was chronic at diax,dont know nowRead blogs on here but I need practical advice.Iv e got my ginger biccies,pics and openjune front jammas laptop.Anything else I should pack inc food.thankyou in advanc