Would you be willing to share your stopping story?
ยท If if there are any UK patients who have already stopped therapy and maintained a stable molecular response, or any who might be considering enrolling on one of the stopping trials when they open here in the UK please contact me if you are willing to be interviewed in order to share your experience?
The focus is to make a video that tells the story of how patients feel about the possibilities now open to CML patients who achieve stable MR at MR4 or MR4.5.
TFR (treatment free remission) is an attractive option for many, but there are several areas that might concern patients and it would be helpful to all involved if these issues could be explored.
UK stopping trails are due to open in the very near future, so if you are in stable deep molecular respnose and are interested in talking about how you feel about this subject in the context of one of the following profiles:
1 Your experience of stopping therapy if you already have- or
2 You are considering enrolling in a stopping trial-or
3 You are not comfortable with the idea of trying to stop therapy, and your thoughts about that
please contact me by email at cmlsupportgroup@gmail.com and I will explain in more detail.