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Interferon / Roferon / Peginterferon negative side effects research

Hi,

I would like to help other people who are in treatment or about to start one with any kind of Interferon. I was on this drug for a whole year and it was , mildly said, the worst time of my life.

I had side effects like fever, nausea, vomiting, hair thinning, fatigue, mild depression, muscle ache. What were your side effects and how did you handle them.

Are there any home remedies that someone can use while on Interferon?

Share your story with me and lets help others on their way through this. I wish i had some kind of support, someone who knows how it feels like, when i was starting.

Also, if you are about to start this treatment let me know and i will be willing to help you as much as i can.

Hi Claude,

I am not sure where you were/are treated, but - certainly in Europe and specifically in UK- Interferon in any of its forms is NOT recommended as first line therapy, and certainly not as a mono therapy. Tyrosine Kinase inhibitors like imatinib, nilotinib, dasatinib etc. have been used for front line therapy for chronic phase CML since at least 2003. Therefore I am rather confused by your post. I do hope you are now being treated correctly and no longer need to suffer the side effects of IFN.

Sandy

UPDATE:

I finished creating my research / book with the help of steadyhealth and it's completely free.

It's called "Dealing with Interferon Side Effects: Patient Stories". And it has...well, exactly what is says. Interviews from other patients who were on Interferon.

I also created and added another booklet called "Interferon-About" which is a collection of useful links i gathered through my research.

I hope this is of some help to someone:

http://www.steadyhealth.com/interferon-side-effects

Thanks.

Claude