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pcr at 3 months

Hi everybody. It has been a long time that I didn't post because I really feel bad since 2 months. Indeed, I think I suffer from a bizarre side effect of tasigna: It will make you laugh but I suffer of urine problems that make me go to the toiletts every 30 minutes and make me get lot of pain in my urinary system such as irritation . I don't sleep, I have made all the urologic neurologic analysis, NOTHING!! I waited today for my results at 3 months to stop tasigna because I saw the side effect "always want to urinate" in the web notice, but my results seem to be good because the bcr abl decreased from 91% to 0,68! I feel satisfied but at the same time, I really suffer ALL THE TIME, that make me feel under depression but I precise this is not a psychologic problem because the pain exists. I have tried different medications but it is getting worse. Has anyone known the same problem?

Cheers,

Francis

Hi Francis,
pretty spectacular result and right on target. Congratulations. However, it sounds that you are suffering pretty badly with one of the side effects... it must be hard for you.

I am sure you know this but you must drink a lot of plain water when you take any TKi. If you are not doing so already I suggest you try to drink at least 1.5 litres every day.

If all your urology tests are negative then you have to try home remedies. It might help if you can get sodium bicarbonate (natural) then add a pinch of so to each glass of water and drink as often as possible. This will help alkalize your urine which can help stop the irritation/pain.
Drink natural cranberry juice too.

I hope this resolves for you soon. Otherwise you may need to change TKI to one that does not have this side effect.

Sandy

Hey, francis!
congrats for your result. i'm sorry about your side effects and hope you can manage this over the time.

p.s.: not a great world cup for us...germany kicked our asses :(