Hi to all, I've joined this forum as the wife of someone who was diagnosed with CML nearly 6 years ago. I am interested to learn if there is anyone else out there who has suffered with a drop in testosterone levels which have caused considerable and recognisable symptoms, and if so have they been treated with Testosterone therapy and did it work. A lot of questions I know, but I am struggling to find relevant information on the internet and struggling to get my husband's GP to recognise that there is an issue to be addressed. Any help would be much appreciated.
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Testosterone levels in male CML patients
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Supplementing with hormones -particularly with testosterone- is a difficult area to advise on as there are many effects (some quite scary) that can become an issue. I am sure long term TKi therapy - as well as the diagnosis of CML itself- can cause a lot of stress, both physical and psychological, which has physical effects. I am interested in the effect of such long term stress on the adrenal glands and how this can manifest in adrenal exhaustion. Normal adrenal and thyroid gland function are essential to health.
I can only suggest that you try to find out about adrenal function and how if supported you can solve the issues caused by low hormone levels in both men and women.
As a suggestion you might start here:
http://blog.adrenalfatigue.org/
Dr. Wilsons products are available in the UK through Nutri-Link Ltd.
http://www.nutri-linkltd.co.uk/
Hope this is of some help- it is a really difficult subject and how to deal with it can be quite confusing. But as with all things- a little self-education might hold some answers.
Sandy
If not yet solved the problem : as a cml patient used Testosterone suplamentation due to hypogonadism resulted most probably from treatment . it works! you may get plenty of information by joining the group at
https://www.facebook.com/groups/testosteronereplacement/
and
http://www.excelmale.com/
There are 3 main studies showing that TKI results lowering Testosterone though few are reaching hypogondism.