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World CML Day 22/09

As some of you will be aware an idea that we should 'celebrate' World CML Day on 22nd day of the 9th month was started in 2008 by the CML Society of Canada in order to raise the profile of the disease and the revolution in its treatment. This idea was taken up by other patient groups and has become a special day for CML patients worldwide. In our view it provides an opportunity to remember those CML patients who, for many reasons, did not survive long enough to see TKI therapy completely turn the prognosis for this disease on its head, where the majority of patients who have access to optimal therapy can be confident that they will live out their normal lifespan. The CML Support Group, with the help of a small group of volunteers and the expertise of 'FolkLabs' - a soft­ware design and devel­op­ment com­pany who build web and mobile soft­ware to sup­port organ­isa­tions with a social mis­sion - have been working hard over the last 6 months to redesign and rebuild our website so that it fits its purpose and works efficiently on the different internet platforms that many of our members now use. We will launch our new site on 22nd September, World CML Day, and would love to include images of our members as our contribution to encouraging CML patients worldwide never to give up hope, not only for increased access to the best possible therapies, but also with the hope that in the very near future we will see a cure for CML as well as other life threatening diseases. If you are willing to help share our message on World CML Day then please send us a 'selfie', or a photo, of yourself holding a card with one of the example messages below: 'I live well with CML' or 'I live with CML Everyday' or some other positive message that you prefer and is personal to you. We will try to include as many as possible on the new website. Please send images before 16th September and remember to include your permission for us to use your image publicly as part of our World CML Day initiative on 22nd. Attached your image to an email and send it to CMLsupportgroup@gmail.com not forgetting to include your name (just your first name is OK) and your permission for us to publish it. thanks, Sandy