I am new to all of this. I new something was going on from a abnormal white blood count, but for years my body was hurting. I am only 28 years old and I have three wonderful children of my own, but for years I was having joint pain and several test came back negative for anything such as arthritis ect. I was just curious if anyone else suffers from severe joint pain and what seems like nerve pain? Also anythingto help me learn more about diet changes ect. I am on Sprycel and I have shortness of breath, dizziness and pain. I no the shortness of breath is caused from lack of oxygen and that would relate to the dizziness but I am concerned about the amount of pain has gone up since starting the sprycell.
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Diagnosed sept. 18 2015
Hello and sorry to hear that you have been suffering for a while. I didn't really have any pain prior to starting treatment but I did once I went on to Imatinib. If you are suffering from shortness of breath on Dasatinib I would go and see your clinician as there can be an issue with pleural effusion with this drug which may be the cause of your breathlessness - worth getting it checked out.
K
Hi ... welcome to this forum. I agree with Karen that you should ask your clinician to investigate the shortness of breath you are experiencing with dasatinib. You are right that low HGB can cause dizziness etc. but shortness of breath could point to a side effect from dasatinib which should be dealt with.
If you need any further advice please ask here - where are you being treated?
Sandy
I am just experiencing the same symptoms too lately, i am on Sprycel 50mg and while shortage of breath is not a problem, i have this blurry vision, heavy head and general body aches, it feels like hell... my HGB are at 11.3 and platelets 44, i will check again next week but, i wonder if is a drug side effect or just the anemia caused by the HGB etc. thank you all.
Hello Gian,I have been on 50mg Sprycel for about 4 months now .Within a few weeks I got blurry vision, It didn't happen gradually just woke up one morning and realised I couldn't read small print .Consultant dismissed it and said go to my optician who also said no wont be medication .A few weeks ago I started with pain at the top of my leg felt like a trapped nerve but when I go for a walk the pain is also in my hip joint and lower back so I can't go very far now .I have just had xrays to see if I need a hip replacement Once again this has come on suddenly so I too was wondering if Sprycel was maybe causing this .Everyone seems to think not but I have my doubts.Denise.