Hi there. Am pretty new to all this, diagnosed in March this year and currently kicking back for the Summer having been signed off work until hopefully October. All going well so far on tasignia/nilotinib (do you need numbers? - my monthly blood results are on the up and my first 3 month BCR-ABL has dropped from 500,000 and 350,000 to 0.9 and 0.45. something like that anyway - have been re-tested with a similar result and am going back next week for more bloods).
Anyway. It's the hair thing that is bothering me today. It's just everywhere. Nobody can see it getting thinner (I think - that's what they tell me anyway) but there's too much in the brush sometimes. Does anyone have any stories/advice/sympathy that I can read?
Interested to find out more from you all - it's not that nobody understands what it's like to have CML - but when you look good but feel utterly shattered it's not easy - am hoping to learn from you, support and be supportive.
Hope to hear from you - thanks!
apologies for any typos, am on my ipad!
