Dear Friends. I have spent the last week in hospitals, first in Minneapolis, then Mayo Clinic in Minnesota. The do not know if the growth under the left eye and in the orbital area is from an infection or from Lymphoma. Antibiotics in first hospital had no effect. All sorts of imaging and then biopsy at Mayo Clinic. Current information is that CML is not involved. This, so far is separate.
Pathology will be finished they think by Thursday to see if it is Lymphoma , infection, or something else. My oncologist and a Lymphoma specialist are on the medical team. I am fortunate in the excellence of Mayo Clinic and that traditional Medicare and my supplemental gap insurance with Blue Cross Blue Shield will probably cover everything. Dasatinib is still $15,000 a year out of pocket, Medicare picks up the other $130,000. Crazy health system in the USA.
I really do not want Lymphoma...with all that follows. Thanks for caring. I’ll let you know what they find. Gitel