Hi
i have recently been diagnosed and have been on 300mg twice a day of Nilotinib for 4 weeks now. I would like to know if anyone else has side effects. Mine are pretty bad they include
nausea to the point I can’t eat, fatigue where I just sleep all the time, aching in the back of my neck that gives me headaches, a pulsing feeling in my head, hot and cold constantly, blurry vision. I was worried the CML was causing these symptoms but it’s only been since I started the meds except for the blurry vision and head pulsing. I am coping with them and my Dr says it should all settle down as my body gets used to the tablets. I don’t want to reduce my dose as it is working quickly and bringing my levels down from 100,000 to 29,000 in 2 weeks and getting better!!!! Any help would be very appreciated as I am very scared and just not sure anymore.
Thanks