Hi guys.
Hope you all are doing well!
I was diagnosed this February.
At diagnosis, BCR / ABL was 44.3 and WBC was 94
After 1 month of 400mg imatinib BCR / ABL was 25, WBC 2,14 , but Plt raised to 537
After 2 months of 400mg imatinib BCR / ABL was 19,9, WBC 2,81 , but Plt raised to 745
3rd month the BCR / ABL result jumped to 37.3, WBC 7,53 and to Plt 1400. After that, a new bone marrow sample was taken. No mutations were detected. My hematologist prescribed me a new medication – nilotinib 400mg /twice a day. I have taken nilotinib almost for a month now. I haven’t had any major side effects except maybe some fatigue but that can be also because of the stress (work + family + new situation etc).
of course, this intermediate setback made me very anxious and worried. Now I have been taking nilotinib every day for 30 days (400mg /twice a day), I have also taken 3,000 IU / day of vitamin D3, and this week I went for blood tests again. The results were that Plt had fallen down to 218 and BCR / ABL, which started to raise from 19.9 to 37.4, had fallen to 33.6. the decline is not large, but must remain positive, that is still a decline and I have to give time for the drug to act.
I just wanted to share my situation with you and if anyone has any thoughts and similar situations / solutions I would be very grateful!
Andre