Hey everyone,
I just wanted you all to know that I finally made MMR @0.072% after 2.5 years on 600mg Nilotinib.
To say this has been the hardest time of my life is a massive understatement but I am extremely happy and emotional with the result after having being stuck @0.1 for 1 year.
You all know the struggle, but the biggest take home I have learned from my journey thus far for any newcomer is these numbers do bob around. It's hard I know not to freak out over a "bad" result (small incline, decline, stuck/plateau etc) as I have done for the last 18months. It’s also important not to compare your results to anyone else you see on here. We each have our own journey but you can at least see a common trend between different responses. And I am very guilty of over catastrophizing these things as a sufferer of anxiety for many years.
With all that said without this forum and its members I would have been truly lost.
Thank you everyone and I wish you all continued success with your treatments.
Alex x