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GVHD

Hello all, long time since I have posted! My name is Sarah... my husband Jason and I posted alot at the beginning of my diagnosis in 2018 and in 2019. I eventually failed several TKI's and then ended up having a chromosome mutating that quickly swooped me into a bone marrow transplant. I received my transplant in May of 2020. Yes, during Covid with no visitors... it was something else! I have been fairly healthy since my transplant... I even ended up getting Covid and was sick for about a month... it was very very bad, but I have recovered from that as well. Recently I have noticed a lot of changes in my skin - its like dry skin but was worse. It is all over my body. I am wondering if anyone has dealt with GVHD of the skin and what it was like? I am currently at 0% cancerous cells in my body but GVHD can still occur. I did meet with a dermatologist yesterday and they took 2 biopsies of my skin and waiting for results! 

If you have any questions about my transplant journey, please feel free to ask. Hope everyone is doing well!

Sarah

Hi Sarah!

Yes I recall your husbands posts and had wondered how your transplant had gone and I wished Jason well and to let us know how you got on. That’s absolutely fantastic that you 0 cancer cells and that at the moment you are hanging on with what I can only imagine has been absolute hell for you all. I am glad that you recovered from Covid too. Blimey life has certainly tested you all but no one more than you.

I wish you well with your journey and a return to a more normal life.

Alex

Hi,

I remember reading your husband's posts,It is nice to hear you are dng well after your transplant.Hope you guys have a nice and calm life after all these turbulent times.

Hi Sarah. Just read your posts and would love to know how you are getting on after the transplant? 
:)