Hi , I’ve never been on a forum before so I don’t know if I’m doing this right . Sorry . I have just been diagnosed 3 days ago . They said they have caught it very early maybe 6 / 8 months in . I was wondering if because it early stages that I won’t have side effects of the tki . Also when do the side effects start . I’ve only had nausea and diarrhoea so far for couple of hrs each day . I was suffering with tiredness and night sweats before which I put down to the menopause as 54 . I just really don’t know much .. Thankyou for reading this . Sorry I really don’t know what I’m doing
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Hi Thankyou for replying .yeah I’m ok , still nauseas and been getting cramp which I have never had before ..but ok I’m thinking that’s it’s not a big deal and life will carry on as normal as I’m in the early stages and not really poorly like a lot of people are . Feel like a bit of a fraud , posting on here . Suppose I don’t really know what to think . I hope you doing well
Oh i think we've all had the fraud feeling at some point! After i was admitted to hospital and on chemo pills ,I kept thinking "why am i hear with all these sick people?"
Weird cramps are pretty normal on TKIs, 400mg of magnesium daily should sort you out (magnesium glynicate or taurate, not oxide) . Make sure you take the meds after a carb heavy meal and you may get less nausea. I found dark chocolate helped with it too.
Im almost 7 years post diagnosis and attempting Treatment Free Remission. Ive lived in 4 countries on 3 continents and traveled to many more... So it deffo not something that slowed me down.