Dear all,
I am CML Patient from Hong Kong. I may move to UK in coming 1 - 2 years. May I know if all cities in UK can consult the CML cases? Should I go to consult GP and GP refer my case to specialist if I came to UK?
For recent CML treatment direction, may I know if mechanism for TKI Stops. I think my case is eligible to trial TKI stop. Any successful cases here?
Thanks a lots
Hi Terris
Although i cant help you very much on the UK health system, i have moved many countries during time since my diagnosis in 2016 and ive never had an issue.
I have private worldwide insurance so i simply make an appointment with a hematologist-oncologist when i move to new city. They will take your history so i keep a record of important milestones ti tell my new doc like when i was diagnosed, whether it was chronic or advanced phase, wbc at diagnosis and when i went into full remission (ie when bcr/abl became undectable)
In the UK it will matter where you live and if you are going private or through NHS. There are many folks on here better versed with UK specific but aa far as changing countries, is gonna be fine. If possible bring 3-6 months of TKI with you so you dont need to stress about that when you first arrive.
As for stopping, uk docs are generally supportive but from personal experience, wait till you are well settled in your new country, i found stopping was more of a mental load than i was prepared for...
Hi, you are kind to reply me.
Yes. I can imagine that Stop TKI is heavy load on mentally that os why becasue of this I can not plan my immigration to UK now. this will create more uncertainity for my CML.
Although i have dignosed for nearly 10 years. CML still give me so many decision problem.in my life and living.
