Hi,
I would like to know a little bit more about some of products like herbs/ or supplements used in combination with the medication I take for my Leukaemia. I was diagnosed with CML early last year, and as I can imagine for everyone, for me it came as a big shock which I am still trying to come to terms and adjust. I have always been a very active person, very busy life style and only by coincidence after having one of my COVID jabs, that I develop some botched patches in my skin, and was feeling quite unwell that I took myself to A&E and after many tests, I was told that I needed to remain in Hospital as I had to speak to one of the Heamatologist about my abnormal blood cells. I still never understood why they meant with that, then to find out by one of the consultants what their suspicions were. I have suffered and dealt with chronic back pain for many years, and also have been dealing with severe anxiety, but never understood quite well what was the meaning of the results, until the mention the C word. I then started a treatment with Imatinib and after six months, I entered what they call remission stage, so I was quite confident that things would remain as such, then after Christmas this year, I started to have some sort of discomfort in my tong and small white blisters, I obviously started to panic, and had biopsy to check the nature of it, I was initially told by my consultant that it wasn’t related to the medication, but maybe because I like to take herbal teas, maybe that was having some effects, after the biopsy, results came back and there was nothing cancerous found, they advised me to go back to my Heamatologist and explain this and to check once again if there was anything to do with the meds. I did so, and was seen by a Junior Dr that time, who was quite helpful and did mentioned that he would try to check some if my organs, as INE of the results( my liver test) was coming up a little higher than usual. They checked again and my consultant was notified of this, then I was admitted into hospital, for further investigations, as my liver test went up the roof, they found out that I seemed to have some sort of inflammation in my liver, and the liver consultant did contact my Heamatologist consultant and explained that this could of been caused by tge Imatinib. After several investigations and biopsy of my liver, they decided to stop the Imatinib and see if that would help, they also gave me some cortisol meds, which worked well with tge healing, and the spots and discomfort on my tongue disappeared. After few months, I was then clear and my liver enzymes went back to normal, I have been put on another medication which it’s calked Disatinib, and they started me on 50grms, with the view of going up gradually to 100grms. Am sorry for my long story, but while dealing with my back and chest pains( which they trying to diagnose as Costal Condritis), I currently try to manage with my pain by taking paracetamols and doing stretching and yoga, in the meantime I want to know if it’s safe for me to take some of the fish oils, as I used have them before I was diagnosed to help me manage the pain. I then read up about it’s not recommended to take Omega 3 fish oils while taking the medication for the leukaemia, it’s quite confusing, and sets off my anxiety as I don’t know what to do. My consultant says that usually just better to keep a healthy diet, but they don’t have really much advise on pain management, other than asking me to get back to my GP for alternative pain release. I would like to use alternative herbs/ supplements that might help me with pain/ inflammation. I have also been told that some of these symptoms can be related to menopause as I am 50 now, but no one seems to give me a definite answer. I am a bit worry as well as to when I go into tge higher dosis of the medication it might causes inflammation in my liver again. I do get a mild discomfort in my tongue at the moment( roughness) and a bit sensitive, but so far I haven’t had any blisters.
thank you
