I am about to embark on a frozen embryo transfer in February after having frozen 5 embryos prior to starting Dasatinib 3 years ago. I have just reached a log 4.5 reduction for the first time and personally I feel like I’m in a good spot.
My doctor has just given me a treatment plan which includes coming off Dasatinib for 4-6 weeks prior to implantation and then going on interferon as soon as I get pregnant.
My doctor has sought advice from a CML/fertility expert so I think she’s keen to follow his lead, but I was wondering if anyone has any literature I could share with her about other approaches to managing pregnancy and CML?
Also, has anyone been on interfuron or have any experience with it? I’ll be honest, I would rather just take the risk and monitor my BCR / ABL than take interfuron as a preventative measure given the side effects are pretty bad including flu like symptoms and fatigue every day.
They discovered my CML during a random routine test so I’ve never had really high numbers and I’ve responded well to Dasatinib since day 1.
I feel like no one is actually considering my specific risk profile, which I feel is low. I’d prefer not to be on anything whilst pregnant. That said, I don’t want to go against my doctor’s thinking either because how am I to know what’s right, and I of course don’t want to put myself in danger.
Any input and advice would be welcomed!