This month I was informed that my healthcare provider will start using generic Nilotinib. To be honest I didn’t think the generic was going to be available until sometime near the end of the decade. They gave me a reprieve and still filled the brand order but the generic is coming for me soon. Has anyone been prescribed the generic for Nilotinib? If so could you please share your perspective?
Thanks,
JP
Hi Joe
I've been on tasigna now for almost 8 years and just received a generic version for the first time today.
Not sure how I feel about it to be honest. I do know there isn't complete consistency across brands of any meds, I've experienced this first hand on Sertraline (anti d). I will report how it goes and how I feel.
Al
Ya my insurance is starting to roll out the generic too. I’ll be on it probably by the end of the year if not sooner.
My experience with generic Imatinib is that not all generics are the same.
Also I don’t think they are as effective as the real McCoy or brand version.
The Rx companies don’t make it easy for the generic companies to make a quality product.
They don’t share info.
Be ready for some changes.
On the bright side at least it will be cheaper. In this day and age I am leery of all these astronomical prices.
Not sure how it is on your side of the pond but here in the US it’s downright scary.
Let us know if you experience anything out of the ordinary with the generic.
I’ll do the same once I’m on it.
Cheers,
JP
JP,
I haven't opened it yet, but I received my first generic nilotinib. I kept getting my meds when I was trying TFR because I really didn't have any faith it would work for me. Now I have a couple of months stockpiled and don't have to worry about having enough meds on hand while traveling.
Off track, sorry. The interesting thing is my current drug plan, which I am keeping for next year, doesn't have the generic on their formulary for this year, and they won't cover the generic next year. Weird, but I guess I'll be going back to brand in January. They haven't been able to answer why they are covering the generic now, but won't next year. Medicare drug plans are so strange.
Hanni,
I would keep in touch with your health plan on this issue. They will probably change back to the generic. I can’t see them resorting back to the more expensive option. But if you do go back to the Brand then all the better. You have yourself a good drug plan.
For me I just got notice that I start on the generic in January ‘26. I just hope any new side effects are minimal…. Too bad because my body was getting quite accustomed to Tasigna.
JP
