My name is Sylvia Smith. Dx July 1998 with CML. Went the usual route Hydroxyurea, Interferon, Gleevec and recently Nilotinib/Tasigna. My body did not respond well to the large doses of drug required in the trials and I was taken off several times. Bcr/abl escalated to 100% positive and I had to inject Granocyte to boost the cells that collapse with Nilotinib. This I am still doing, injecting one drug to balance out the other.
I decided to research into other avenues and found the Feverfew CML website. Very interesting! I sent off for a supply from a catalogue and started taking one daily along with the small dose of Nilotinib(1 every three days). The last visit to Hammersmith showed the bcr/abl was down to 6%. This is after I have been on Feverfew for 80 days. Is it a coincidence or is Feverfew working as the site suggests?
Has anyone tried Feverfew? Neither My haematologist at Frimley nor Hammersmith have heard of this herb which basically is a weed that practically grows in everyone's garden. Normally used to treat migraine but useful with arthritis and inflammatory conditions. The main side effect is all my joints and muscles feel absolutely great whilst I have been on it.
I'm due at Hammersmith Mon 16th June. It will be very interesting to see what the counts are this time.
Keep well all of you
Sylvia
