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Gleevec Rash and Pins and Needles sensations

Group...has anyone out there had experience with Gleevec related rash and Prickly feelings? I was diagnosed with CML in 12/08 and started on Tasigna in an experimental protocol with MD Anderson Hospital in Houston, USA. I developed acute pancretitis and had to stop the Tasigna. They put me on Gleevec about 45 days ago. I developed a rash and they treated it with steriods. The rash abated but came back in mild form with a constant feeling of pins and needles all over me. My blood counts are all ok except for the EOS level. It has gone from 2 to 27% in the last 30 days. Has anyone experienced this? My onc thinks it may be realated to the Gleevec rash response.

Tom in Kentucky, USA

Hi Tom - I get pins and needles in my arms mainly while running, I was told to drink a glass of milk before exercise and this has helped somewhat.

I also sometimes get them at night

I too get excema which I treat with hydrocortosine cream, but I had that before DX anyway

rob - http://cmlblog.spaces.live.com

Hi Tom
My son had pins and needles feelings in his feet, legs and arms whilst on Glivec.
kestrel

Hi Tom

I had very bad pins and needles whilst I was on glivec. It started approx. 4 months after I started the glivec and was initially only in my hands and feet. It then spread all over my body and at one stage I even had it on my face. Eventually it settled down to just my hands and feet and it only disappeared when I stopped the medication.

I also had a very funny feeling over my whole body; rather like a whole body flush, very difficult to describe. It used to come and go and my whole body felt hot momentarily. Very odd and again it totally was related to the glivec.

I was the first patient that my haem. had that had experienced these sensations.

I hope that it settles down for you. I didn't experience any significant rash though.

Susan