Hi I was diagnosed with CML two years ago while pregnant at the age of 27. Since then I have a gorgeous 19 month old boy and started Glivec had reached a MMR!! So lifes going really well.
I just wanted to ask if anyone has suffered from dermatitus. I've had it for a while and cant seem to shift it. I had a look on the Novatis web site and it said dermatitus can be a side affect.
Dear Hannah,
congratulations on your lovely baby boy and on getting a MajorMolecularResponse too!
Yes, you are right some people do suffer skin reactions to imatinib. I had that side effect briefly and my doctors treated it with topical cortisone cream. The rash cleared up quite quickly and did not come back.
Has your doctor suggested anything to treat this side effect?
best wishes,
Sandy
I had excema as a child and very mildy in later life
Since DX and on imatinib I get it slightly worse, as Sandy says easily treatable with a non prescritpion over the counter hydrocortisone cream.
In fact my skin is one of the more noticable side effects/changes since going on imatinib as it is very sensitive to things like sun and wind and small cuts take a long time to heal. small pric eot pay though
Y A H O O O !!! Y I P P E E E !!!
Number 1280 in the Zero Club
Zavie
Please write me at zmiller@sympatico.ca
Thanks
Thanks for your replies everyone. Yeah the Doctor has prescribed a few creams, right now I am on Fucibet but can only really use it for ten days then have to come of it. But as soon as i stop using it, it comes right back, is there a barrier cream you suggest to keep it away?? And can I just ask, Sandy when you mention doctor, is that your normal GP. I have brought this up with my consultant a couple of times but they just say, I not really sure what this is.
Also, alot of people seem to know all the technical side of CML (for exapmle Log 3-4?) i have not got a clue what they are talking about? Does your consultant tell you all this information freely or do you really have to ask?
Maybe I don't ask enough questions but I just get, your counts are all fine, see you in 3 months. Is it up to you to find out more?
Yeah Rob I've noticed that too! My lips are always cracked, I thought it was because I cycled alot, but have not been on my bike for a month or so, so guessing that must be a side affect to.
Your right though, small price to pay!
Hope you all doing well.
Also, does anyone know if there are any CML groups going on in the Bolton area?
Hi Hannah,
I meant my consultant not my GP. If you have questions about your results you need to ask your consultant as they often think that if you don't ask it means you don't want to know. Of course many people don't ask because they think their doctors are too busy but it really does help if you can understand your blood counts and response to therapy.
So really a good way to learn is to do some internet research, or ask questions here and on other forums, and then ask your doctor for more detail of your blood counts.
I am not aware of a support group in the Bolton area but there is one based in Liverpool which is not too far from Bolton.
I will try to find the contact details and let you know.
Sandy
