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CML Petition is up and running-PLEASE GET ALL YOU KNOW TO SIGN UP

Dear All,

finally I have managed to get a petition against the current NICE ACD for imatinib intolerance and the recommendation that dasatinib and nilotinib should not be available to treat CP and AP imatinib intolerant patients.

I have also finished a statement that I will send to interested parties (or at least I hope they are interested!)

I have included the full statement under the Newswire and will get Roger, our IT guy to create a special box for the petition.

Meanwhile, you can sign it below or read the press release under Newswire first and then sign the petition as you can also leave a short comment.

www.gopetition.co.uk/online/34249.html

It would be great to get as many of your friends and people you know to sign too.

Thanks,
Sandy

Hi Sandy,
I have posted the link on cmlyorkshire.webs.com and also spreading the word !
Thanks Chris.

Thanks for the quick response... take a look at the link under Newswire to see the Press statement as it might help people with wording their comments on the NICE website.

I'm relieved to get it all done at last... suffering from back ache due to sitting for a number of days at my computer! I have run the statement past a few clinicians so I am pretty sure it is OK.

Thanks again,
Sandy

Sandy

I have posted the e-petition on the www.talkbloodcancer.com.au Australian site with other relevant information.

I salute you

Sue (Aussie)

Dear Sue,
thank you so much for helping to publicise the petition. I see that their are already signatures from Australia.

thanks again,
Sandy

Many thanks for this, Sandy. I have mailed all in my address book and hope most will sign up. HOpe the backache eases now.

I've signed up - quick and easy - and another good thing is that you are not required to use a separate email address for every signatory.

Janet

Have just been asked by my Tai Chi instructor if we have a paper copy of the petition so he can take it round all his classes. Is this possible?

I have signed and forwarded it to all my friends and family.

Thank you for working on our behalf.
After three months I am responding really well, with normal blood count and PCR requested today. Now on three monthly checks and off to Egypt on Monday for some warmth!

beth

Dear Beth.... have a great time and enjoy that sunshine ;o)
Sandy

Hi Chrissie.... this is purely and online petition. You could print off the Press statement and make copies. Maybe it would help to explain the background to people in his classes and that might encourage them to sign up online.
I will send you a copy by email.

Sandy